This blog is about most of what I remembered from childhood to growing up, and some encouragement, reviews of movies and shows, and just other fun things that I like to write about. I'm thankful to continue this blog to share things with those who read it and those who see it because I want to share more. I'm grateful to share what I hope will give people joy and happiness when they read this.
Monday, December 9, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty Seven
I see on the school's website that there isn't school today, so I take this time to create an online fundraiser for not only my sister but for the other families that go through this. I put in the description that the money is going to go to the charities that help people like my sister so they can find a cure. I tell them how my sister has passed away and how it has made me feel, but I tell them everything will be okay. I set it up and then log out of the account. I then check any emails I may have gotten. There was one from the girl's cousin, and one from the news station. I open the one from the news station first. It simply reads: Good morning, we are just sending out a reminder that the holiday story piece we worked on yesterday will be airing tonight. We hope you enjoy watching with your family as much as we will be enjoying watching from the news station here. One of our news team reporters will be tweeting as some of you high school kids say, but they know twitter better than I do. Anyway the program will air at seven this evening, so be sure to tune into channel 10 for KRLSN News to watch the special. Sincerely, the KRLSN NEWS TEAM. I now look at the email from the girls cousin, and it reads: It is with a heavy heart that my cousin has passed away early this morning, her mom, which is my aunt notified me by the same email you stayed in contact with them by. You must know that before we even met your family, my cousin has been on a very long journey with this and that she did her best for us to keep fighting but now she can rejoice and be happy in Heaven with Jesus and reunite with Him. Please keep our family in your prayers as we will keep your family in ours. The news station knows about it but they are not making any changes to our holiday piece. The only thing we have asked them to add for us, and for you guys is a in loving memory of, well we got permission from your parents of course and they thought that was wonderful and agreed to it. So that is what the news station will do and they're still going with it as planned where it airs all the time, so that people can be inspired by it and touched by a story that is inspirational. Who knows where this will lead to, but all I know is that I'm here if you ever like to talk. I know what you're going through right now, and I could always use a friend to talk with. I reply, so could I. She leaves it at that. That same day it had come time for the holiday special, and my family and I cried and smiled but I sent out a tweet to the news reporter who was tweeting, thank you for everything you have done. The special was great. The news reporter quickly replies I'm glad and this was and is an amazing story. I go and check the online fundraiser and I can see already over a million people have donated to it. My whole family has been overwhelmed with the support other people we know and love and others we hardly know, have donated to a cause that will help those find a cure my sister and a new friend have gone through. I log back out of the account and just hang out with my family for the rest of the day as we count down to the new year. It is now the beginning year of 2008 and we have decided that we're grateful and thankful for the time we got to spend with the one we love. We have closure now because we know that we have Jesus but we also know we have other family and friends that we can talk to, but we mainly know that Jesus will take care of our fears and our hurt and our sadness we have in our hearts. Although, my sister would have wanted us to be happy and not cry over her loss. So we're going to try our best to remember her with happiness rather than sadness. We're going to honor her in all of our activities we do as a family and I am going to remember that my faith and my hope have gotten stronger everyday because I know that it was God who has helped me throughout all of this and because of that I will know that it's the good memories and not the bad that get you through the best of times. I pray and hope that as you have followed our journey and my sister's journey that you have learned something from all of this. Now does this mean her legacy of what used to be is over? No, it just means that this chapter for me telling our story to all of you is done. So as I say goodbye, I hope you remember our story and remember all of us as we have for all of you. Sequel: It's been a long time since I've written on here again, as I know I've probably said goodbye in a different chapter. I know that you've probably needed a new update and that is what I'm going to give. It's been a long time since my sister has passed but in that time we've done well and even though the news has stopped airing the special, and we decided not to go towards the television business of making it a show, we have gotten mail from people who have been going through what we have and we've even had the girl's aunt and the girl I had met at a competition over for occasions. We have always wanted them to feel welcome, since they had been praying for us like we have for them. In other news, that online fundraiser of mine has ended and the money has been sent to people who will work on finding a cure so that no one else has to go through what we have in the past year. My sister's story is still being told by myself and all of my family members and the story of the girl's cousin who had passed later on. I believe we have more to our stories because God created us in His Image and He is still working in our lives, helping us reveal the next chapter in our lives. Prequel: So now this is going to be a final update on us, we're doing well and the one girl's family is going to go with us on a trip to where we're going to share her cousin's story as well as my sister's story. Their legacies are going to live on forever because we're going to be sharing every impact that they had on us, as well as others that had come into their lives. We hope to make a difference in their families lives as well as any kids who have been going through what they have had to go through. So we just wanted to say thank you for one last time, because having many people follow this has been a blessing and it has been wonderful to know that a lot of people have supported this journey as well.
Sunday, December 8, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty Six
We all decide to travel home early and as we're we see a news reporter coming towards us before any of us could get to the bus. The news reporter spots me and the other girl I had met and she says that she would like to do a story piece on us. Then she tells us how both of our parents have told them the story of how we met and how my sister's story was relate able to the girl's cousin and they would like me to do a story piece on how it's helped my faith and helped me with hope. They then tell the other girl they would like to a piece with her where she tells about her cousin's journey in continuing to fight and would like to interview both of us, and just get our perspective on how we met and will we continue to stay in touch. Next the reporter tells us that once they finish the piece that we do with them, they will work on it and let us know when it will air on television and if it does well with the news then they know somebody in the television business that would love to create a holiday special that would continue to air through out this month and would continue to air throughout years to come. We glance at each other and then back at families we know and love and then we agree. The coach tells the team to go with her to the bus and they will be waiting. Our families however, are standing off to the side a little because the news reporter had already gotten the things they needed from them, which was the stories of the two people we have mentioned. Now they want us to tell them everything that I've just mentioned. I go first. The news reporter starts asking me questions about what it was like to grow up in my household. I answer, with how it was always a delightful and memorable experience growing up with a family who has so much faith and hope in God, because our parents have taught us that when things get rough and we don't know where to go, always turn to Jesus and He'll be there to catch us and when we're feeling down to pray to Him because He always listens to our prayers. She asks me then on how I felt when my sister had been diagnosed and how I felt when I found out about the things she had been born with. I told her that it made me sad, because my brother was in the army and everything up till now and it would be hard to watch someone you love be in and out of the hospital so many times, only to find out that she had something else. I tell her how I felt when she never did get to return back to school and do the thing she got chosen for. I start tearing up, because it's making me emotional to talk but I continue on. I continue with talking about how it was hard to take over in a position that was made for my sister. I tell her when I would find out that she was born with another syndrome that would make her go to a different hospital further away from her earthly home, I felt sad because I truly felt the treatments would work and she would be home and when she got transported back, well I thought our local hospital would send her home in the morning, but to find out the news that she passed, well it was like a feeling of grief because my best friend was taken away from me. She then asks, if my faith and hope have grown stronger since my sister's passing. I answer with, yes because my sister if you knew her, was a joy and caring person to have around and you couldn't help but smile when she was in the room. Even though she fought for a long time, she's in Heaven not hurting and that's the way things need to be because it was in God's timing that He called her home to Heaven and we know everything will be okay. She thanks me and then goes to talk with the girl. The girl tells her story and we're crying silently, because we never really knew how much the girl's cousin's story was similar to Blake and I's sister. Once she finishes, we both share how we met and how we would stay in touch because having a friend that understands something like what we've been through, but mainly to know what my sister has been through, is a rare find. When I say a rare find I mean it's rare to know that there would be somebody out there that shares the same hurt, the same worry and so being able to have met and become friends at a competition like this has been an incredible journey. The news reporter thanks us and tells us that they have everything they need. We say goodbye to the news people, and then our families say goodbye to one another. The girl gets on the bus she came on and so do I, and as for my entire family I watch them follow us from behind. The girl's parents follow behind the bus the girl is in and finally my sister's teammates and I arrive at home and I send an email letting the mother of the girl's cousin that her daughter would have been proud and our family prayers for all of you daily. The mother replies, thank you we need it and my daughter is resting now but so glad you got to meet her cousin at the competition. I leave it at that and I spend time with my family, talking to them about how I want to create an online fundraiser to help people like our sister, so that their families can know that no matter what it may seem like or feel like right now, that they're never alone in this world. My family agrees and they couldn't be more proud in what I have done this year, because that's who we are a loving and caring family who believes in God and trusts in Him that God is worthy and loving.
Saturday, December 7, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty Five
The next morning, we eat breakfast at the hotel and go over the routine again. Then we get ready to leave the hotel to go back to where we preformed last night. Today was a Christmas Morning performance and I couldn't believe it, this was the last day preforming at a place like this. This was the last day that I would be performing with my sister's team. I mean was this the life changing experience I was supposed to fulfill? I mean was this what God's plan was for my life? I kept thinking about this, after we arrived to our destination. We practice for a bit, while Blake, my aunt, and parents take their seats. The girl from the one team comes over and says to me that no matter what you're fortunate to have a brother, you're blessed to have an aunt, uncle, cousins, and parents that are here to support you. She says if her cousin were here today instead of in the hospital again then she would be saying to any of us that when God calls us for a purpose we may not be able to see, when He is working among us and calling to us, that is when we should be praying and praying that God knows what is best for us. She goes back to her team and the competition director says our team is up first. Right after we finished, we watched the other team that was here the other night. We were happy to know that no matter who preformed that it was all going towards a good cause. I thought about what the one girl told me today and all I could about was how she was right. I thought about how I knew I was blessed to be celebrating Christmas with my family, I knew I was blessed to have celebrated Christmas Eve with them too. I knew that I was blessed to know if my sister was here that we would be truly blessed to know that she would tell us everything was alright because before she passed away, I somehow knew from when I did see her that one night, that she somehow knew mom and everyone were going to be alright, and I think the reason for that is because God knows that we're going to be okay as long as we believe in Him and we know that He can do all things. He knows that we have hurt when we are in grieving, but He is there for us. He knows when we're in danger and He protects us. He knows that when we pray to Him, He hears us loud and clear. He knows our needs, because He created us in His image and our faith and hope need to grow stronger everyday. So why would I tell you this? Well, because when we heard the director call both teams up towards him, we knew that a plaque for both of the teams would be donated to our school in honor of a family member. So the one girl got the plaque in honor of her cousin and we got ours in honor of my sister. We all went back to the hotel and ate supper together, and then we went to our hotel rooms to go to sleep, because we knew that we would be traveling back home again, early tomorrow morning.
Friday, December 6, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty Four
It's the day of the Christmas Eve cheering event, and everyone in my family are going to be there. I love my family because they're always supporting each other and we always are there for another. I'm already up and in the uniform, my sister once had. Yes, I know what you're thinking but ever since my sister was here on earth we could and would share different outfits with each other. Anyway, I leave a note saying I ate breakfast already but I'll see you soon. I leave and I get to the school, and we go through the routine one more time. Next, we get on the buss, and I'm nervous as ever and I wonder if that is what it feels like when somebody's feeling under the weather. We get to the hotel, as we get off the bus and we practice again, because it's always a must. We eat in the hotel as we all packed our own lunch, and then we get back on the bus, and drive to the destination. We get to the place that we will be preforming as we get there, we check in and we tell the director that I'm filling in. We tell him that my sister has passed and then we tell who it's dedicated for. He writes all of the information and tells us the time to come back and then I whispered if it would be okay to practice here, and he looked at me and told me yes, which I heard loud and clear. So we practiced and we practiced a lot, and then out of the corner of my eye, I saw all of my family. I run up to them and give them all a hug. They show me the program of when we preform, I'm excited and nervous all at the same time. They told me not to be nervous and to enjoy because pretty soon, I'll bringing people all kinds of joy. They take their seats and I go back to where the team is. They look nervous as I did a minute ago. I see that they're nervous because a different team is here and I see a girl about my age coming over to talk to me. She says to me, I heard about your sister from a cousin of mine. You may know her, as she met you and your family not that long ago. She tells me that she knows it's the same girl whose her cousin because she knows her cousin has mentioned on the phone that she has emailed me and everything. She thanks me for doing that, because she tells me that her cousin could use some friends that understand what people like her have gone through. She greets her aunt and her cousin at the door, but said good luck because no matter the outcome we're all doing this for charity and for the people all over the world and for the ones we love. She then says goodbye, and walks away. We sit alongside the floor as we watch them preform, but no one knew that it was only us against them. I guess that's all the people here had room for, because I thought we would be competing against more people. Finally, the routine for them is over, and we're up next. I just hope that I can do my best. We're done preforming, and thank goodness for that as we sit back down, waiting to find out what happens next. The director says thank you for those who came as all of us will preform again tomorrow on Christmas Day. He says drive safe and thanks to those have participated, but remember no matter what, each person that preformed today, is always a winner and that the place we're all in now is going to donate money to the charity and researchers who're trying to find a cure for these illnesses. We all leave the gym and go back to the hotel, as we eat supper with our friends and families. Finally, we go to sleep and because tomorrow is the last day we will be preforming at a gorgeous place like this. I drift off to sleep and then I wake up as I'm thinking of what the one girl mentioned to me.
Thursday, December 5, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty Three
Shortly after everything had happened, we all decided to go to bed. The next morning, I got up as I normally did and got myself ready for school. Today was the last day of practice right before I would be preforming with my sister's teammates and knowing that, well maybe this was the life changing experience that was going to test how much hope I had in myself, and how much I had trusted God to help me with my faith. I saw that Blake was up, and he told me that he would take me to school. I didn't argue with him, because I wanted him to be there for me. Blake dropped me off at school and he said that he was going to go to the store a minute and he'll be back to watch the practice. I go into school and I go to all my classes. I go to lunch and then school has already let out. I head to practice and I see Blake who has bought flowers for each of us, including the coach. I see all of my sister's teammates have thanked Blake, and even the coach has too. I thank him and hand him my flowers as I go to practice the routine. Blake sees how important this was to our sister and no matter how much she did, she was always determined to never give up without a fight. I can see it for myself now. It's scary to think how much has changed in the last hour, because even though I know she's not here anymore, she's always going to be with me, and that kind of love for your sister is a bond that can't be broken. I finish the practice and the coach tells us to be here early tomorrow morning, so we can leave to go preform. We tell her okay, as we leave the gym. Blake told me that he couldn't have been more proud of me, carrying on a legacy that our sister would have known to be proud of you for doing. He tells me that the light of hope that I once saw is coming back because I am doing something that will honor our sister, but I'm also honoring God because God's plan for our sister was different, but the plans He has for me, are be presented right now. I know that my sister was my best friend, but why did she have to leave the earth so soon? Why did she have to leave our family behind? Why did she have to go to Heaven and leave us? My brother hears me speaking and asking these questions out loud and his answer to me, is that the reason she left this earth is because she left it peacefully and it was her time to go, she had fought as much as she could and God called her home. She left us behind, because she needed to be in peace and be in Heaven where she is healed. He tells me that even though it feels like she left us, she is still with us by watching over us like God does for us and she is always going to be there in our hearts, just like God is in our hearts. He tells me it's okay to feel sad, and it's okay to feel upset, but remember the happy times, instead of the bad times. I start to smile because I know he's right, and as much as I dislike that, I know that what I'm going to be doing tomorrow is going to be in honor of my sister, and it will be dedicated to her and everyone else who is still going through the same things she had to go through, even if the cases are less severe or mild. I know that doing this tomorrow is going to make a difference for everybody, including myself.
Wednesday, December 4, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty Two
The funeral is over, and friends said goodbye, and only the family was left to have a private burial together, not too far from church so that we could have our time to grieve and mourn the loss of a cousin, sister, niece, and daughter. The casket was lowered into the ground as we silently prayed with the pastor who gave us peace to remember that this isn't a forever goodbye, but a see you till God calls all of us home. The burial was over and we all went back to the house and ate some lunch and told memories till it was time to go to bed. The next morning, while everyone slept, I got up and got ready for school. I knew it was going to be hard the first day but it was what my sister would have wanted me to do. I go to school and I finish all of my classes. I finally go to the practice and I cheer with a smile on my face and I do the routine with grace. I know my sister watching down on me from Heaven, would be telling me, even when we're sad just remember God always has a plan. I finish the routine and I know the girls are sad, but I assure them of what my sister would have said, and then that made them glad. They gave me a hug, they wiped the tears from their eyes, and reminded me that it's okay to cry sometimes. They left the gym as they knew it was time to go home. The coach stopped me for a moment, and said I know it's been tough, but just know that you are doing a wonderful thing and that you're making a difference. A difference where you have to have faith to be strong and courageous, and have hope and know that God is going to help you through this time. I tell her thank you as I start to cry a little, and just as I do I know she is hugging me, while saying no matter the struggle, no matter the pain, God is taking care of you and your family and that is something that is never going away. I felt better and wiped my tears away, and I told her thank you and she said your welcome. I arrive home, and just as I do my cousins are thrilled because they said we have something for you. They told me to sit on the couch and to close my eyes, because this was a special surprise. So I told them okay, as I awaited with glee, as I'm wondering in my head, what it is my cousins could have gotten me. They told me to open my eyes and when I did, I saw a beautiful photo and scripture quilt that my aunt and uncle and the cousins had made with loving care. I knew that the scriptures on the quilt were my sister's favorites, and the photos were everything family photo that was taken, including some special photos of Blake, my sister, and I. I thank them all, because this gift is special and it came from people I love and care about most, and that is something I'll treasure most. I treasure it forever and always, because my sister was special, and she is always in our hearts.
Tuesday, December 3, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty One
Today is going to be a long day, because today is my sister's funeral. We decided to have the funeral and calling hours today because we want to honor her memory in living on how she never would complain. The calling hours are this morning, following the church service to do the funeral. I saw my mom and aunt Vivian this morning. I saw them getting ready. Then just as everyone is getting ready, I hear a slight knock at the door. I go to answer, and it's my uncle Jarred who has decided he was not going to miss being at his own niece's funeral and calling hours. He sees aunt Vivian and walks over to her. She embraces him tightly as she knows how hard this day is going to be for all of us. Then I hear the door knock once more. I now have been shocked an slightly surprised to see Malory, David, Callie, Shelly, Sheryl, Carol, Holly, Mason, Callie, Darla, Danny, Nancy, Nicole, Nathan, Justin, Jack, Jackie, Lily, Annie, and Emanuel, who are our cousins. Mom and Dad greet every single one of them and thank them for coming at short notice. They say that things like this will get better, but you can see each one of us is struggling to put on a brave face today. Blake who is old enough to drive, takes mom, dad, myself, and uncle Jarred in one car. Then aunt Vivian takes Danny, Darla, Callie, Holly Nicole, Nathan, and Nancy in another car. Then Mason our cousin who is old enough takes, David, Malory, Callie, Shelly Sheryl, Carol, Annie, Emanuel, Justin, Jack, Jackie, and Lily in the other. We get to our church where the directors of a funeral parlor that my parents had met with before we would find out that my sister had passed, were waiting for us. So that anyone who was family could see my sister, one last time and say goodbye as a proper way of doing things in private. The casket is only open for viewing only for those who could be here as a family. Blake hugs me and I hug him tight, as I whisper gently for my sister in Heaven to hear. I gently whisper as Blake knows, that the thing I'm whispering will forever remain in my heart and left unknown for friends who come today, because the thing I whispered was sweet dreams, till we see each other again, because your Heaven reuniting with Jesus who saved us from our sins. I go with Blake to sit down in our seat, as I watch all of my cousins silently cry and kneel by the casket praying that their cousin, my sister in Heaven can hear them saying goodbye to a beautiful girl, who is rejoicing with a heartfelt smile. They sit with us, and some of them in the row behind, as they now watch Uncle Jarred and Aunt Vivian saying goodbye to a niece who was very well loved. Uncle Jarred and Aunt Vivian they sit in the row behind, as it is now our parents turn to say goodbye to a loving daughter that was compassionate and smart. They said their goodbyes, they sat beside us, as they watched and we all the casket close before us. The people who came to pay their respects told us how sorry they were and she'll be truly missed. We've allowed some close friends to sit in the first two rows with where we sat, so that we could remember how blessed and how thankful we truly are. The crowd of people who filled every row, was a honor and blessing, because my sister would've wanted to let everyone know that no matter how far or who we are, this is just an earthly home, and someday we will be together in Heaven even if it seems like it's far. The pastor spoke with loving and care and then we each shared memories, and sang a few songs, and then prayed as we knew that prayer is always a great thing to do. I hope that my sister sees me somehow because I wish she would know that I'm trying my best.
Monday, December 2, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twenty
We all went to bed, after we prayed and then the next morning our parents got a call. Aunt Vivian was comforting mom as dad answered the phone. It was the doctor from the hospital. Blake now holds me in his arms as we await to hear the news of what the doctor is telling dad. Dad hangs up and asks to see Aunt Vivian with mom, outside for a moment. I know that can't be good. Blake takes his arms away from me and starts to walk over to the kitchen window, looking down at the sink as if he was trying not to think of anything else. I however pace back and forth trying to think that there can only be and should only be good news. My dad comes in and then aunt Vivian with mom who looks sad. I could only think of what has happened but I try not to think of the worst case possible. Dad asks Blake to come outside with him and then Blake comes back in, sitting on the other side of aunt Vivian also like he's seen a ghost. My dad then asks me to come into the living room, where we can be out of earshot and then the news my dad tells me, hits me like a brick. It makes me fall to my knees. It makes me angry inside, but the anger inside of me isn't that I'm mad but rather an anger of how the goodbye was so soon. I cry, and cry. My dad kneels beside and comforts me. He tells me that even though my sister has fought and fought for life, sometime last night through early this morning, was her time to gain her angel wings. She's not suffering from any pain and that it is a blessing that she passed peacefully in her sleep. I couldn't really understand what he meant by that because I was in shock from everything that seemed like yesterday was happy. I know that my sister wouldn't want me to be sad, but I can't help that my emotions are getting the best of me. I hate that feeling but what am I supposed to do? I mean there is only three or four practices left, and then it's the big day. Well it would have been my sister's big day to preform in front of all those people. I mean what would my sister do if she were here? I just can't imagine anything right now. I then hear my cell ring and it's the coach from my sister's practices. I answer and the first thing that comes out of the coach's mouth, is I'm so sorry to hear about the passing of your sister, it was and had been an honor working with her. I say thank you for the kind words, and then she says that all of her teammates have loved having me fill in for my sister and voted that I should be the Christmas Spirit Cheerleader and preform at the Christmas Land Of All Things Beautiful Christmas Spirit Center with them and all I can say is thank you and I accept. I feel like this is something my sister would have wanted me to do and then we hang up. My dad then says to me that he is so proud of me, and then we go back into the kitchen and go over all the memories we have had with her and then I see an email that says my daughter heard the news from your mom, and we're so sorry but my daughter is thinking about attending the Christmas Eve and Christmas Day events that are happening when you preform the routine, and to let you know that she is thinking of all of you during this time, even though we have only known you and your family for a short amount of time. I shortly reply, thanks.
Sunday, December 1, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Nineteen
I learn that from the phone call I had with my brother, not moments ago that the reason my sister is going to be at our local hospital, is that she has to be monitored overnight because of what seemed to be cured. I knew that it felt like a million pricks being jabbed into my sister's arm or mine for that matter. Aunt Vivian said to me that she got a new update that they had just arrived back with my sister. I figured she would be tired and wouldn't want to see me. Blake texts back to my aunt Vivian that our sister wants to see me very much and that it is quite the opposite of what I think. I go to the hospital with my aunt and I see my sister laying in a hospital bed in the hospital room and I'm starting to cry tears of happiness because I've missed my sister so much and now that she's back here, I love being reunited with one of my best friends. My sister notices the tears and she starts to cry too. She motions me over and we hug like we haven't hugged in forever. I ask her how she is. She tells me fine. I ask her what it's like to not have been in pain. Although before she can answer, she's throwing up. I think oh no, what else can be next. What could possibly be wrong. The doctor comes in. The doctor asks to speak to our aunt and parents in private. Blake stays here with both of us. I put my head gently on his shoulder. He wraps his arm around me, as I pray silently that God helps us through this. Blake watches our sister who has finished throwing up, as the doctor and our parents come in. Our parents ask to speak to Blake and I out in the hallway alone. I know that can't be great news. The doctor stays with our sister as we follow our parents. The first thing once we're out of earshot, is Blake politely asks what this is all about. I look at him as if I'm trying to be brave for all of us. I don't know what to do but I turn back towards our parents as I listen and watch what they're about to say. The doctor told them that our sister's been diganosed in a short amount of time with stage 3 relapse disorder which means what the doctors in Washington was cured and gone has come back. They also say that because she's in stage 3 that there is going to be times where she vomits and when she's going to feel tired. The disorder is like a different version of a child or grown up that goes through cancer treatments. My sister is going to be monitored over night because of everything that happened. I can't imagine my life without her, and I ask how long will she have to stay here? I ask if she'll be able to preform? I need to know these things, because if she can't then what happens then. I mean do I take over or will another girl on the team be in her position. I just can't think about that right now. I can't, it makes me too sad. I honestly don't know what to do, so I cry silently in my aunt Vivian's arms. I know Blake is crying into my parents arms but I know that he believes everything will be okay. I wish I could still hold onto that light of hope and have that faith, but it's so hard seeing the one you know is your best friend go through something like this, because you love them very much. The same day, we all go home and say goodbye to my sister. We tell her, we'll be back in the morning. She nods her head and drifts off to sleep since it's been a long day. We all go home and start to pray.
Saturday, November 30, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Eighteen
I walk towards where my aunt is sitting and I sit down beside her. I put my hand on top of hers and she slowly turns her head towards me. I can see that her look is still serious but seems to be in distraught. She looks as if the news she received was gut wrenching news. I begin to ask, but before I can finish saying anything, she wraps her arms around me and hugs me tight. I know it can never be good news like that, if she is hugging me tightly. I feel as though that light of hope I once stared into is fading away. I compose myself and try to ask again. I finally do ask if it has something to back where she lives and she shakes her head no. I then ask if it has to do with my sister, and she says yes. I ask if the treatment they had been doing was working. She told me it had been, but my sister suffered a relapse from it and had to stop. I ask what kind of relapse because now I'm worried. I'm worried that this news is going to be either good or bad. My aunt said that the relapse she suffered gave her an allergic reaction which then caused my sister's feet and legs to swell. My aunt then tells me that she is getting an ice compress treatment to keep the swelling down, but after the swelling goes down, she is going to be transported back to the local hospital here, where she'll stay for further treatment. The doctors where she's at may or may not be able to help her in Washington but I show my aunt the text I received earlier. She told me, yes that it is all true but then she showed me the news of her text message and then I knew that the news I received earlier was old news. I go to my room and cry in private and my aunt gently knocks on the door. I tell her just a minute and quickly wipe the tears from eyes. My aunt Vivian says it won't be long till they're all back here, but we must have faith that your sister's speech will get better, that her therapy to regain use of her legs and arms will be better, just before Christmas Eve and Christmas Day. I then knew, she was talking about how my sister may or may not be able to preform if she doesn't get any better. I feel bad for my sister because I know it's not how I would want her to be right now. I would find a cure that would make everything that has happened go away. I mean she is the sweetest sister, I believe she's fighting so she can live a long and healthy life and be able to preform. I have lunch with my aunt and then we both hear the phone ring. The name that comes up on the caller id is Blake. I know he's calling from his cell, but the question is why is he calling. I mean does he have good news to share or is he calling because he has terrible news. I try to figure out in my head, and then I decide to answer the phone and hear his voice, but then I hear another sweet voice that has been precious ever since I've heard it. I couldn't believe my ears but it was like my sister's speech problem had gone away, as if an answered prayer had been given to us by God. My brother even says that she is using her arms and she's walking. I feel like another prayer has been answered by God and I ask about the swelling. My brother then tells me that the swelling is gone and the allergic reaction she once had is gone. I feel like God has given us miracle after miracle, and ask if they are still going to stay in Washington. My brother then tells me that they'll be transported by plane today and will be back at the local hospital soon. I then start to worry because if God answered the prayers of things that have been taken away, then why does she need to be in a hospital still. Blake then tells me something that has me frozen still, with what he says about our sister and when I hear my brother talk to me about this, all I can think is what will be next.
Friday, November 29, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Seventeen
The next morning, I go to school as Blake and my mom are still sleeping. I go to all my classes and before I get to the practice, I see a text on my phone. The text reads: My darling daughter, I love you more than words can say. I brought Blake to the hospital to see your sister because we got a text from dad, shortly after you left. My dearest daughter this is a little heart breaking to say at the very least. I don't know how to even express my feelings toward you. Your sister's surgery is fine but she has developed a little speech problem along with a little mobility disorder. The doctors say that the mobility disorder is going to affect some things but if she sees a speech therapist and a therapist then her mobility for her arms and her legs could improve just in time for her big performance. I start to cry because that isn't what I wanted to hear, but I wipe the tears away and go into practice. The practice doesn't start yet because I have received a text that continued on from mom saying: I also want you to know that I'm going to have aunt Vivian come to the house once you get home from school today. I'll update you and let you know if anything were to change or if aunt Vivian needed to bring me all the way to Seattle Washington for any reason. With love and care, mom. P.S. We don't when we will be home but please listen to your aunt Vivian and make sure that no matter what happens, we have our faith and hope to know that God is in control of all of this. I then start to practice with all of my sister's teammates and then practice is over and I go home. I finally arrive home and my aunt is waiting for me as I walk in through the door and shut it behind me. She tells me how her and uncle Jarred live in the country in a beautiful log cabin in the woods. She tells me how when they were kids and how the only toys they played with, were the toys they had and anything they could find to play with. They told me how they didn't have cell phones but how they had phones hanging on the wall. She told me how if we really needed to see a doctor, that they didn't go to the doctor because the doctor came to them. She told me how their parents would home school them because there wasn't any school nearby that her and uncle Jarred could go to and learn, like us. She said we are blessed to have a lot of things and that we should be very grateful and thankful for what we have, rather than what we don't have. Her words hit me, and I start hugging her. I can't seem to control my own emotions, because I can't stop thinking of what would happen if my sister passed. I really can't imagine her not being able to preform on Christmas Eve or Christmas Day without smiling. She has a kind heart and wonderful compassionate spirit that is far from doing anything mean. I love my sister because she is like a friend to me and I can't imagine my life without her. I just couldn't. Then all of a sudden, just before I do my homework, I can see that my aunt looks like she has just seen a ghost and she sits down. Her face looks like she has just read something that she didn't expect to read. I don't know if it's about my sister or something from where my aunt lives, but whatever it is, it definitely has my aunt worried, and then of course it worries me very much for her.
Thursday, November 28, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Sixteen
Blake and I look at mom again and we see that she has a distressed by serious look on her face. We see she is a little worried and mad. We see we could have done better but she starts to say something, except she freezes and then tells us, just let her know if they're going to be okay or are going to go somewhere.I know this is not great but it's like she has decided not to punish Blake and I because of what is happening with my sister. She tells us that she will be going to the grocery store and if dad calls to pick up and tell him where she will be. We follow orders and go back to talking on the couch. The phone rings and it's dad. We pick the phone up and we wait for dad to answer and all of a sudden there is a long pause. We seem worried because we don't want bad news. Then dad answers but he's talking rapidly and we tell him to slow down. We tell him where mom is and he says okay. He tells us that our sister is being transported to Nilicolian Hospital is where they're going to do a surgery that hopefully will see if the calcium and vitamin d levels will be how most levels for a girl age should be. The hospital, he tells us is only an hour away from where she's doing the reverse cure study research program but the good news is, is that the surgery is part of this hospital's research study and if it becomes a success, then they will be able to come back home and continue any medicine they give as a home treatment plan. We sigh in relief because we want this to work for her and we want it to be a success so we can see her again. I tell dad, to have mom call him as she gets back from the store. We hang up and my brother and I hug and we cry tears of joy but knowing that our sister might have a chance at hope is something that we're forever grateful for. Mom finally walks in the door and we tell her to call dad right away. So she does and then finally when they hung up, we all cried and hugged one another because we knew this was a special moment. We knew we had nothing to fear because God is in control of this. I realize that some of the days right now are only getting closer to the performance my sister is supposed to be in, but if she isn't going to give up without fighting to come back to us then I shouldn't be doubting or be complaining because she hasn't. Blake knows that it's been hard for everybody but he knows that she'll get through this and at least he hopes for that too.
Wednesday, November 27, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Fifteen
The movie is over and mom isn't on the couch anymore. Blake and I decide to go see where she would have gone. Finally, we find in her room fast asleep. So we decide that it's time for both of us to get to sleep. The next morning, I don't have school so Blake and I decide to go to our local hospital to see the girl that we've been telling him about. I don't really know the girls first name because I never thought to ask. My brother much older than I, ask if we could see a friend of ours. The nurse tells us to have a seat. She calls a room that must be the girl we met that day, when my sister was here. The nurse calls back to the desk. She tells us that the mom will see us, in a minute and to have a seat. I know this can't be good news if she won't even let us see her daughter or worse the transplant didn't work. My brother turns to me and wonders what is wrong and even asks who I am talking to. He must think I'm crazy if he hasn't been reading the documented journey I've been writing on Inentala Blog, which is a blog I created myself. I had decided that if I was going to write something, I might as well begin our journey. I know, I know it sounds like a hallmark type thing because of something that you would see in a movie. Although, I don't think it really matters because if you're speaking from the heart then please know this is my way for giving our story but mainly my sister's as well. The mother of the girl comes down to us and it looks like she didn't sleep at all.I don't even have the time to ask what's wrong or why it seemed like she was tired, because she had already been crying and hugging my brother. I don't understand at first but now I think I do. Well, at least I think I do. She then starts telling us how the operation for her daughter was a success but there was a setback after the surgery was over. She tells us that the setback was when they tried to wake her up after it was over and she didn't. She should have woken up but something happened they say that her daughter went into a sleep induced coma because whatever was happening, and they will try to wake her up in a few, and hopefully no side effects are to come after she gets out of the coma. The doctor comes to find the mother right away. My brother Blake goes with the mom, while I wait to hear the news. While I wait, I see I got a missed call from my dad. I call him back. My dad answers after the second ring and tells me my sister is getting her first treatment done in this study. They take a blood test to see if the levels of calcium and vitamin d have progressed into better numbers and as for the other syndrome, they doing a water fluid hydration iv medicine test to see if the symptoms of the first lessen and become less frightening and non severe. I tell dad that sounds good but risky. He then tells me that as that may be, it could be a step closer to finding a cure for both syndromes. Which is the purpose of the reverse cure study they have at the hospital she's in. I guess if they didn't do these types of studies then they wouldn't be called research studies for a reason. I tell my dad to tell her I say hello, as I need to go and hope to talk with them again. He says goodbye and I go over to my brother and the girl's mom. I know something isn't right by the way my brother is comforting the mom. We all sit down together, and the mom gets a hold of herself and starts saying how her daughter woke up. I think in my head that's great, so then what is the bad news. She goes on, that her heart is fine. I still think in my head, another piece of wonderful news. I continue to listen though. She then says that after she woke up, her speech was a little delayed and had trouble with speech. She shortly then says that her daughter is going to need a speech therapist to help her daughter regain her speech and even though her new heart is working fine, she is still going to have somewhat trouble with things. She won't be able to drive because of what she has gone through, but she's going to be fine. I give the mother a hug and I say, I'll be praying for all of you. My brother does the same and we leave. We finally, arrive home and our mom is waiting for us. Blake and I exchange looks at each other.
Tuesday, November 26, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Fourteen
I walk over to the couch and the person is talking to mom. I feel as though I should know them but it's hard to place because they don't turn around. I tap on the shoulder of the person talking to mom. I put my hand over my mouth and start crying. I had no idea Blake was coming home. Let me start with who Blake is. Blake is our brother, now Blake growing up was in a private high school and then went to college. Finally, after Blake graduated college he joined the United States Marine Corps where the last anyone heard from him, was that he was on base in North Carolina doing extremely well. I hug him and he doesn't let go. He knows that I'm happy to see him, but more importantly I know he knows that I'm glad that he came home to be with all of us through this difficult time. My mom tells me that she got a call from the one girl's mom and that her daughter was in surgery for the heart transplant. She then tells me that dad and my sister have arrived at the hospital in Washington. I ask Blake if He'll pray for everything, since I know mom has told him well, pretty much everything. Blake prays and he knows that with God in control that there is going to be a good outcome. I care about family and people who know what it's like to go through things that my sister is living with. We chat and laugh at stories of all of us kids that did crazy things growing up. Blake then loses that expression as he walks away with the phone in his hand. I can tell that his facial expression is serious. I can tell he has somebody on the other end that would seem like news that would hit you in the gut. He has an expression that shows some sort of news is to come to him and maybe to all of us soon. He continues talking and my mom gets up from the couch, and goes to the front door and looks out from the window and I don't know which way to go. When I say that, I don't know if I should go and comfort mom and assure her that everything will be fine, or if I should go towards my brother and make sure that the news is good and not bad. I can only hope that the call he is on, has nothing to do with our sister. I can only hope she hasn't passed away. I can only hope that it's not the mother of the girl, it seems my family has become very fond of and I can hope that she didn't have an complications during the surgery and pass away. I can pray and hope that what is about to happen, after it seems my brother gets off his phone, will be good news of what we needed to hear all week. Although, I can tell something is bothering him because he shakes his head. He puts his phone down and shakes his head. I can't think of him about to tell me that my sister passed already. I shudder at the thought of what he is about to tell us. Then he speaks and tells us that the call he got had nothing to do with our sister or the girl, but a friend of his. He starts to sob quietly, and mom comes over and hugs him tightly as if she knew he was talking about. I try to ask but I figured it wouldn't be right, so I don't ask him at all. Later on, dad wants to video chat with us and we do. We say hi to our sister and she gently waves. Dad said that they would start the treatment soon, but had to take care of another patient first.We all pray over her right now as we're all together on our video call, and then the doctor comes in and we hang up, after we said goodbye. It had been a long day, so we eat supper and watch a movie together.
Monday, November 25, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Thirteen
I wake up and get ready for school, because I know today is the day I get to help the kids with special needs at our school. I also know that while my sister is getting the care she needs, it's also where I can step in and practice with the team she has become apart of. Mom isn't up yet, but that's okay because I knew things would be different and I always believed that there would come a time where things would change for the better and something out of the blue would happen someday. I know what I just mentioned didn't seem like it made sense but it will. I finally head off to school, and begin it with being a role model to those who are in a classroom with special needs. I finish with the kids and head off to class. I get a text right before I head off to my first class of the day and it reads: Hi sweet girl, it's dad, I wanted to update you on your sister because I wanted you to know. The first transplant reverse study treatment was going very well yesterday, but they had to stop it today because your sister got sick. She wasn't anywhere near people that she could get sick from them, but rather got sick from the medication that would fight off any infection or virus. She isn't going to be transported to the hospital that is close to where we are for surgery, but rather transported by helicopter to Seattle Washington for the one study we had been talking about that day at our local hospital. These doctors here are hopeful that your sister will get the best care in Washington State, that if it works then she can return back to where we live and go to school and have somewhat of a normal life. I know it's been hard these past few weeks, days, and months but we will get through this. I've already informed your mom and she understands that whatever the case, God is in control and we need to have faith and hope that this will finally work this time. If we doubt that then we're doubting our faith in Him. We can't do that, so I'm asking you to continue to stay strong for your sister and because even when you don't feel strong enough to do so, know that God is helping you through all of this pain and hurt. I love you, and your sister does too. I'll try and call tonight when I get an update and know how your sister is. I'm going to be traveling by car this time to the airport, and then by plane to the hospital your sister will be at. I know it's hard for you to not see me right now, but I promise things will get better. I'm so proud of what you're doing in school and for your sister. Love always, dad. I wipe the tears from my face and see that an email from the girls mom has come to my attention. The email reads: Hi, as you know my daughter met you and your family. I got the update from your mother and I'm truly sorry. I have to inform you, before you continue to read. My daughter isn't doing well. She is going to a hospital in California where it won't be what your sister is doing. This is a surgery where she will be able to have a chance to save a life. When I say that, the doctor in California is going to have my daughter donate some blood of hers to save a ten year old boy who is fighting the same as her but is also fighting leukemia. The doctor is also going to try and save her life as she's in the need of a new heart. There is a girl about the same age as my daughter and the family has decided to donate their daughters heart. I found out about that last night. The surgeries take place in a couple hours from now, but here are the things they say that can happen when doing this: The patient could pass out or they may not survive if the patient becomes or were to become unconscious and pass away. Knowing how my daughter wanting to save somebody's life and a family wanting to save my daughters well, it's a sad situation because one the family of the daughter that is donating their daughter's heart, has passed away from an unknown heart condition that she was born with. If my daughter goes through with donating the blood first to the ten year old boy, there's a chance she could survive or pass away before she gets a heart transplant. Please say a prayer that things will work out, because I don't know if I could survive with the fact that my daughter whose my only child, left this earth. I would be devastated by it, but I know she wouldn't be suffering and be in Heaven. Pray for us and we will be praying for all of you that things will go well for your sister and your family as well. I immediately type back, I'm so sorry and I'll be praying that nothing bad will come from any of this. I'll pray for the family whose daughter did pass and I'll pray that the boy gets the help he needs. She responds back with thank you. I leave it at that. I go to my classes and then finally go to the practice my sister would have been at. I go home after practice is over and I call out to mom, and she is on the couch with what looks to be someone I know but I can't really tell if I'm dreaming or if it is a reality.
Sunday, November 24, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Twelve
We get home and mom and I have supper then the phone rings. Mom quickly answers the phone and it's dad. I can only imagine what he is calling to tell us. I stay calm and look down at my plate of food, so mom doesn't see that I'm nervous as a little kid who has just received a bad grade or got in trouble. My mother gets off the phone and finally comes back to the table. I look up and see an expression on her face that seems happy but also stressed. I ask her what the news is and she slowly takes a breath and then answers with that the news is good and that they got there safely. She also mentions my sister is at the hospital waiting to be in a room where they will start the transplant reverse study. I sigh in relief because I was hoping that the answer was going to be things were good. We finish our supper and mom does the dishes. I go and check the email from when the girl and I emailed before and she says she got a little report from my father about my sister. I write back that it's wonderful they made and I can't wait to have her back with us again. She quickly writes a back that no matter how big or small that my sister, even though she just met us all, that she's a fighter and she won't give it up till God calls her home. That hits me like a brick, and when I say that I'm saying that because I can't imagine anything happening to my sister. I mean she needs to be okay. I write back to the girl and say to her thank you for praying, and I'll be praying for you as you go through this. She says thank you then I know she stopped because she didn't say anything back after that. I love my sister and I hope that this first research study for a transplant reverse study works for her. I don't want her to have anymore surgeries, and I certainly don't want her to go to Seattle Washington to go through what she was telling me. So I'm going to pray that this works for her, so she can go to school soon, and do what she loves because it is now December 13, of 2007 and I know how badly my sister wants to preform during Christmas Eve and Christmas Day as the Christmas Spirit Cheerleader. I want the first day to be a success and I want her to be okay, because she is like a best friend and if I were to lose a best friend, well it would be sad because I can't imagine my life without her. I love her. The phone rings a second time. This time I answer and it's dad. I am shaking, I can barley catch my breath, but I do and in a shaky voice I say hello. I wait for my dad to reply and when he does I remain silent till he says something that will give me a sense of relief and take the fear and worry away from me and my body. My dad then speaks and tells me my sister got into her room and he stepped out for a bit because the doctor and nurse are treating her with a medicine called Rioelcolian that will take hopefully the bad symptoms from my sister's first syndrome away, and they're treating her with a second medication that involves a second iv that allows her body to fight from getting any infection and will hopefully get rid of the bad symptoms of my sister's second syndrome that she was born with. I ask my dad the name of the second medication and he tells me it's called Juliolicarliantibody and the reason it's called that is because people with the rare bone disease, can get infections with there legs, or they can develop the flu really quickly. He then tells me that my sister is a room that only allows family members to come in and out of because it's a research study that involves 24 hour care around the clock. My sister has to have somebody who will not only take care of her, but make sure she can be able to handle the medication that is being fed through iv's. When I say this quietly to myself, I cry and can barley speak and my mom knows it. So she takes the phone, while stroking my beautiful hair and I sob softly while my dad continues to tell mom that she is fighting like a champ. She isn't giving up and is determined to fight through this to be better and be home before Christmas Eve and Christmas Day. She is fighting to get better, so she can preform with what she knows she was chosen for. Mom tells dad that the school had asked me to do something and he told her to tell me congratulations, and that hopefully it won't be too much longer before we can be together again. Finally, they hang up and my mom wipes the tears away and tells me that everything is going to be good because as long as we have faith and hope, nothing is going to stop what is happening right now. When my mom said this, I knew she meant we need to trust that God is in control of it all. I do trust him, and I know that He has a plan for all of us but it's hard to know that faith and hope could help in a situation like this, when my sister and dad are ten hours away from mom and I. I really do hope we can be a family again soon, because I miss everything about having them here right now.
Saturday, November 23, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Eleven
I waited till the doctor left the room to ask the decision for what was going to happen with my sister. My parents remain silent and my sister tells me. She tells me that she wants to do the study, she wants the doctors to find a cure for her rare bone disease and she wants doctors to find the cure for the other syndrome. She tells me that one of the things the doctors have explained to her is that the study will also help with the other one they caught early. She explained that this study might even have another study that can do a reverse cure study in Seattle Washington that would allow her to get back into a normal life, just like before she found out about her two diagnoses that she never knew she had. I ask about the risks for that one and she said the worst that could happen with doing something that far away is she could have a little bit of a mobility disorder that would limit what things she could do in life that wouldn't allow her to do some simple things like driving or cooking. I then ask about the benefits. She then tells me one in thirty million people like her who have done these before her, have succeeded and have lived to tell their stories, but half of those people who succeed still live with some of what they once had but the cure hasn't been found because these are just studies that don't necessarily cure you fully, but cure most, if not all symptoms that you live with. I feel as though I have been punched in the stomach and someone has pulled on my sleeve of my shirt to say, no matter what happens she would live some kind of a normal life but she's still going to be living with two disorders and maybe a third, if these treatments don't work. I try to stay faithful, and I try to stay hopeful but how is it that my sister can be so positive if she doesn't get to live a healthy normal life. I mean doesn't she want to get rid of these disorders once in for all. Then there was something that happened, a new person came into my sister's hospital room. They had a girl about my sister's age, and the girl began to talk about she knows what it's like to have the disorders my sister has because she has them herself. She tells my sister, no matter what she does, it won't reverse what you have been born with but it will help those who are researching to find a better cure. I know this sounds crazy, but she told my sister that if she does go through with what she wants to go through then remember three things. She told my sister to remember that you have to have faith that this study can help. You have to remember that hope is what will help you in the long run, and finally even if the study doesn't work out for you, not to let that get you down because you're unique in how God created you in His Image, and nothing is more important than that. She then told us how she's been a patient of this hospital for awhile now because her case is more mild than my sisters, but the medicine treatment my sister is having right now, will help build up good cells of my sister's immune system, so that if she is transported ten hours away today then she won't feel as nauseous to be sick. Finally, before the girl leaves she tells us that whatever happens today for any of us, remember God is in control and he knows what He is doing. He knows that there is a plan for everyone and she'll be praying for us, but she wanted to give us her email address and her home address so we could write to her, and keep her in the loop of what was going on with my sister. We then told her goodbye and we all prayed with my sister at the moment. The doctor came in and said the ambulance was ready to transport my sister to the one hospital that had been ten hours away doing the research study. My dad went with my sister this time, and my mom and I decided to go home. I send my very first email to the girl, who was with her mom not that long ago in my sister's hospital room and tell her that my sister is about to do her very first transplant reverse study at LiliamVille Hospital and the girl quickly replies back with praying now.
Friday, November 22, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Ten
The dream or what felt like one is when my sister woke up and started to talk. She was speaking fine. The doctor came in to check on her and said that there was a way to reverse her rare bone disease, so that she could still have somewhat of a normal life like she has been. The doctor said that there is a transplant reverse study being done in LiliamVille Hospital which is ten hours away from here.The doctor said that doing this study means she would miss a lot of school, but if it works then they will transport her to the nearest hospital from where the hospital doing the transplant reserve study is. Which would mean my sister would undergo surgery and hopefully be able to live a normal life. The doctor tells us some risks of the surgery and some benefits of it. I ask my parents in a hushed voice if they think it's such a good idea and knowing my parents they nod their head yes that they're willing to try. I shake my head in disagreement because of the risks, but my parents explain the benefits of this. I try to stay positive but sometimes it's so difficult to be positive with so many things going on, that involve the person you care about and love so deeply. I mean don't get me wrong but my sister is like my best friend, and if I were to lose a friend, it would sadden me with a grief that I wouldn't understand. I just want every treatment option to work and this plan to do a study that has potential risks but some great benefits, that's where I have the most trouble with being able to know how hard it can be to even think about letting my sister do something like this. Yes, I want her to get better. Yes, I want her to live a long life and yes I want to see her back as the Christmas Spirit Cheerleader at school again, so she can preform it on Christmas Eve and Christmas Day, but how can she when she might have to be ten hours away from where we live now. I mean it's a crazy thought, but does it hurt me to know that our parents are actually considering this. Well yes, because what happens if she passes away during this surgery if the transplant reverse study is not a success, and I have the last chance of ever saying goodbye to her, right here and now. I mean I know it's wrong for me to say but this is how I feel inside. I don't let the doctor or my parents, or sister know, because I don't want anyone worrying. I know that just because I feel this way, doesn't mean it won't happen. I mean it could or it might not but if it does, or were to, then I feel like what I did from the beginning, would be something that would change not only my parent's lives but it would definitely change mine. I know that there is still hope that the surgery if she were to have it, then that little bit of hope that I saw in the beginning would be okay. I know my faith would grow stronger everyday, and that the light of hope I had once seen, wouldn't fade like it did before. Although, that is only like a fairy tale when I say that because I honestly am not sure what will happen, or if a decision to do this is going to be made today or not. I guess I'll find soon enough, that is once my parents and the doctor have had a talk with my sister.
Thursday, November 21, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Nine
Well, we made it into a hospital room and my sister is lying in the hospital bed. Our dad went to go get a coffee not too far from we are now and well mom decided to work on a puzzle book she brought with her, and the puzzle book was given to her by her mother our grandma who made it by hand with love and care. I on the other hand decided to keep my sister company, by talking with her about how everyone at school as missed her and then dad came in. He sat beside mom and decided to say he talked with the doctor who would be in shortly. Dad told us the doctor had another patient he had to see another patient. So, we waited for the doctor and then the doctor came in. Well the doctor examined my sister, and decided to call the nurse in. The nurse shortly than after came in and the doctor told her to start her on the medicine treatment right away. The doctor, asked my parents to step outside for a moment. I stay with the nurse and my sister. I even hold my sister's hand, and stroke her hair, letting her know everything is going to be alright. She blinks and tears start to run down her face, and I know what she's thinking. I assure her everything will be fine, and she'll be going to school tomorrow. She looks at me with tear stained eyes and wants to believe me and wants a light of hope to come into the room, and not have anything else be wrong with her. The nurse tells her she's all done and she'll be back to check on her in a few minutes. I tell her thank you because my sister has fallen asleep. I don't blame her, it's been a crazy day. The doctor comes in with my parents, and then goes to talk with the nurse, that just left. My parents, look they have both seen a ghost. Mom can barley look at me and just clings to dad. I look at my dad and he has this quivering lip, like he can barley speak and by the time I ask what's wrong, mom leaves the room. My dad explains that my sister has a rare bone disease called Coloialian Syndrome, which means that on top of her one syndrome they found, unfortunately this one she was born with but they caught it early after she was born, so it can be treated. This bone disease makes my sisters vitamin d and calcium levels low, if she doesn't get enough hydration, but also the right amount of food that will boost her immune system. The doctors want to keep her overnight for observation, but that would mean she wouldn't go to school. My dad says, she will have plenty of time to go back but the reason for keeping her overnight is because they want to monitor if the medicine for both syndromes will have been a success to make sure that she can still have a normal life, and this time they're hopeful that it will work. I mean that's good that the news is hopeful, but I was really hoping she would have been able to leave with us tonight. Then all of a sudden, something happened right before our eyes, something miraculous that no one would have believed would have happened but something did happen and it was like a dream.
Wednesday, November 20, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Eight
I saw something incredible, for the very first time since my sisters accident. What I saw, was her doing the routine that she has loved ever since she was picked to do when she got voted by the student body to become Christmas Spirit Cheerleader. She cheered, she danced, and she did dozens of the tricks that were put into the routine. It was like she was her old self again. I was amazed, yet astonished. I was happy, yet tearful. I was proud to know that her determination doesn't let her down. It's December 12, 2007 and she's going to be able to do the performance on Christmas Eve and Christmas Day. I know she will, because she's my sister and nothing can bring her down, or so I thought. My mom gets off the phone just now, and she has an expression on her face that scares me. I ask what's wrong or at least I try to. My dad's already getting up from the table and consoling her in his arms. I know that can't be good. The light of hope I once stared into, seems to be fading away again. It seems like that a little cloud of gloominess is coming back, as I watch my sister drop her pom poms and go over to my parents, she looks at them as if she can read our mother's mind and she tells me that the doctor was hopeful that the first iv treatment for the syndrome would work but they want her to take a medicine that is similar to the iv treatment but she has to go to the hospital every so often to get the medicine and if she doesn't throw up or feel nauseous then she can come back home and still attend school tomorrow just like planned. If it doesn't work, she has to go to a research clinic to figure out what will and the nearest clinic is two hours away by car, but there is another one that the doctor recommended to our mom and that clinic is in California, which is awful because I couldn't imagine being without my sister or my parents for awhile. I love them so much that I want not a single thing to happen to my sister. My dad did tell us that the good thing about a research clinic is that they are going to try different tests and treatments to help my sister if the medicine at the hospital doesn't help her. So maybe there is still a light of hope out there somewhere, and with me telling you that, then maybe I shouldn't give up so easily like my sister. I mean my sister is a fighter. She wouldn't quit for anything in the world, so why should I? Okay don't answer that, because I know the answer is I shouldn't. Here is one more piece of news, my sister has to go to the hospital now for the medicine treatment which should only take a few hours, but I decide to go with them, this time. I mean I want to be there to support my sister, because if it doesn't work, she'll need somebody to hug. I'm going to pray that it works, and that this treatment will help her, so she doesn't have to go anywhere. I want her to be in school tomorrow. Although, we just arrived and now we wait to be brought back into a hospital room where my sister is going to get her very first medicine treatment.
Tuesday, November 19, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Seven
Today, I'm getting ready for school and my dad has gone to work. My mother is still sleeping and my sister is awake. I ask if I can make her any breakfast and she says she's not hungry yet, just tired. I understand because of everything she's been through. I ask if she would like some water and she shakes her head no, and tells me that she's just going to get a little extra sleep for a few minutes. So, I decide to eat breakfast and then finish getting ready. I'm just about to head out the door as my mom stops me for a second. She tells me to sit down a minute but I try to explain I'll be late if I sit anymore. She says it will only take a second. I sit down. She walks into a different part of the house and as I can't see what she's doing, I can only think of gently and quietly sneaking out the front door before she comes back into the room. I'm just about to get up when I see she's coming back. So the only logical and reasonable thing I can think of doing is to sit back down. She sees I am sitting just like I was before she can even tell that I was going to leave. Mom then tells me she was going to give me this when the time was right, but she thinks now is a good time. I take the box that is colorfully wrapped, and I open it. When I see what's in front of me I cry but I cry tears of happiness. I don't know what to say because I'm speechless. If I were to tell you what I got you would think it might be silly or crazy, but to me it's a gift of thankfulness and it came from the heart. It came from my mom's heart because she made it. She made it with love and care. She decided to give it to me now, because she wanted this to be a special moment between the two of us. She tells me that there is more. When I ask how there could be more, she just tells me that I have to wait till dad is home from work and when I get back from school today. She now has me curious but I know I need to be patient and wait. Although some of you are probably wondering what my gift was from my mother and well the gift was a photo blanket. A photo blanket of our family together and a special photo of my sister and I in our room we shared growing up. Along with the photo blanket there was a sweater that read: Best Sister in the world to deserve an honor of watching out for a younger sibling. I know what you all must be thinking now, how could a sweater be able to have that much lettering. Well it has that much because my mom made it for me. Anyway, my mom says I better go but we'll spend more time together with dad, and my sister when I get back. So I go to school, and the principal stops me. I think oh no, I'm going to get my first detention for being late but I'm not. In fact the principal wanted to know how I would like to be the school's honorary leader for the program we have for those with special needs. I accept and with my sister coming back tomorrow, both of us will have our thing. I'll be making a difference in children's lives by teaching them about kindness and growth and my sister will be doing her Christmas Spirit Cheerleader routines again, since she's been out of school for a bit. I tell the principal thank you for the opportunity and then I go on my way to my very first class of the day. There isn't a half day today, so I go to all my classes, including lunch and then I head to the gym to do the routine with the group of girls my sister has known since we've been in this school, and then I go home. Finally, as I got home my dad was there home from work. My sister was up, and it looks like my mom and her had just finished doing all the schoolwork she missed, while being in the hospital. I put my book bag down a minute, as my parents give me something together. They tell me that this is the last thing they have for me, and it's nothing big, just a little something they thought I would enjoy having. So I open it up, and this time it's a scarlet and silver locket that is in the shape of a pink heart, and inside is a photo of my parents, myself and my sister. They thought I could wear it, so I would always remember how much family is important. Then out of nowhere, my sister gives something to my mom, and my mom hands it to me. My mom said when my sister couldn't move well or talk well because it hurt, she could see it in my sister's eyes and expression that she wanted me to have something that she thought would be the perfect gift. So I open it and inside the box, was a beautiful charm bracelet. My mom said it wasn't made by her or dad, but I knew that it had come from the gift shop, but I could tell there was an angel charm on there with my name engraved in it. My mom then told me she had a lady in the gift shop make it special, because she knew my sister would have wanted me to have something that would make her feel special for what she did for her. I cried more tears of happiness but then I saw something that I've never seen happen in my life.
Monday, November 18, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Six
So it has been difficult with everything our family has been through, but my parents and sister were finally home. I am beyond thrilled and so was my sister. I mean she's overcome some obstacles but this new one is going to give her the determination to never give up. I ask her if she wants to practice the routine with me, so that when she goes to school tomorrow she can have it ready to preform when that time comes. She shakes her head no, as she just walks to her room. My parents tell me to not take it as she just got home, and wants to rest. My parents told me they gave her supper at the hospital, after the treatment. They told me it was just courtesy and policy that after an Iv treatment for my sister's condition that they give as much water and food that my sister can handle. So, we decide to have supper together. I tell them all about my day and how practice went.My parents are thrilled and they expected nothing more or less from me. My sister, now asleep is going to have her first recovery day at home tomorrow and have my mom help her catch up on some of the schoolwork she's missed. Our principal is okay with that because he understands how frustrating everything has been for our family. I on the other hand, have to get up for school in the morning, and still go to the practices until my sister is at school. The principal says she can come back the next day after her recovery day so she can catch up with everything she's missed. Oh, I had almost forgotten to tell you. The person who had called me next was my sister from her hospital room. Yes, I know what you're thinking, how could she be calling from the hospital if she is at home now. Well to answer all of that, this was before she even was home and I knew she was going to be coming home, after everything that has happened. Yes, this was the same day that my dad told me everything when I was at practice. Now, I must be going to bed myself because it's been a very exhausting day and I just want to sleep. My mom has already gone to bed, but before she did, she told me how proud she was of me for continuing to do marvelous and outstanding things for my sister. I told her thanks mom, and that I loved her. She told me that she loved me too. Now as for my dad, he told me that he's going to bed in a few minutes, but he was going to watch a little bit of J10 New Broadcasting News Network. I also might be knowing that you're thinking that's a long name for a news station, but that's what our community wanted. Okay, well that is what the mayor wanted and we can't stop that decision. When I say we can't stop it, I mean there is always this election every so often that allows people like my parents, to vote on what the news station should be called. Now let me just say that last year it was called, May Channel 9 News News Network. Now I didn't like that name, but you see where I am going with this, no matter how our community or our parents vote in the election, it's always up to the people who work for our mayor and then the mayor gets the final word. So this year, our news station name is called, J10 New Broadcasting News Network. I tell my dad goodnight, and he says it back. Finally, I get ready for bed and just as I'm about to, I check on my dad once more. He's not there anymore, because the television is off, and he's gone to bed himself. So I decided to go to bed and get ready for a brand new day full of happiness and excited to see what tomorrow will be for everyone.
Sunday, November 17, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Five
I answer the second time it comes around and I gulp. I gulp because I'm fearing the worst right now. I'm fearing that my sister has either passed away, or that the results have showed something different. I try to be spirited and admirable. I try to be brave, and I try to be positive in all of this going on. I know before I answered the second time, I saw the missed call was from my mom. The second time before I answered finally, it was from my dad. I still remain silent as my dad tells me the reason mom was trying to get a hold of me was because there was a little bit of good news and that there was some bad news. I gulp, and think of the worst possible scenario when I hear that there is some bad news. I sigh when I hear there is some good news. I wait for him to tell me good news and he says the bad news first. I definitely fear the worst and I sit down. I know what you're probably thinking, stop saying you fear the worst when you said that already but you know in any situation, you don't know what people go through till you've been through it yourself and you know how to deal with the situation. I just pray my sister is fine and she hasn't left us and that she can walk, and use her arms and hands. My dad tells me that my sister has CaluianiSyndrome which means that her body can only take so much food and water, that she needs a iv treatment to help her but the good news is that they have been doing therapy with her since her accident and she can walk and use her hands and arms. She can come home and go back to school. She'll be able to do her Christmas Spirit Cheerleader performances and practices. Although my dad said they caught the CaluianiSyndrome early, so it can be treatable but there are some side effects to it. I sigh in despair because I really thought since they caught this syndrome early that she would be okay and nothing bad could come from any of this. My dad told me that some of the side effects of CaluianiSyndrome can cause tiredness, vomiting, possible to catch pneumonia if outside for long periods of time, can cause a skin irritation of a breakout of hives if having any dairy products. The syndrome also has one main huge side effect, that my dad reads and this is the one I dread, but I don't let him know that. He reads to me that the main huge side effect of this syndrome is that people can pass away from it, but if caught early it can be treated with an iv treatment, so that it will help some symptoms of nauseousness, or vomiting, and if it is caught early, that people who live with this syndrome, can live a long time, but if gets left untreated, and most cases for this syndrome normally go unknown, then they can pass away sooner than having a long life expectancy. I cry because there are tears of happiness but I also know that my sister is going to fight through this and she is going to do everything in power to not let this news, get her down. My sister's name, as I've not told you is Penelope Ann Johnson, and my name is Elena Kate Johnson. My dad tells me that the other news that he has is, they will be giving my sister the first iv treatment in the hospital today, and then that should give them time before supper or before I get home from school today, that they should be home. I am crying more tears of happiness because this is making me thrilled to know my sister is going to be alright. Does this mean she's out of the woods yet? No. Does it mean she has more work on getting better? Yes. I believe that some light of hope has come back, into our lives and that our faith is getting stronger and I feel like this is a new beginning. I feel like things are becoming a wonderful reality and that this is the best news that we could have ever received tonight. In a few ways, I feel relieved, and in other ways I feel sad because of everything my sister's been through. I ask if she can talk well now, and my dad doesn't say anything because the phone goes silent, and I see mom's calling me from her phone, and that dad has hung up. I would love to know what goes through my parents heads as this happens, but my mom's connection on her phone is silent and I see she has hung up as well. Then I see an unknown caller comes up on my phone. This time, I'm not sure what to expect and I don't know if I should answer because it could be a prank call or it could be someone who wants details on my sister. All I know is that I answer and what I hear on the other end is amazing, but why it's amazing and the reason I say that, is for another time for you to know and find out. I will say that everything you've read so far about us, has been really difficult.
Saturday, November 16, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Four
My dad finally answered and said hang on one second. In my head, I'm thinking okay I'll wait because he probably just wants mom to talk to me, because he, himself probably can't find the right words to say to me. Although it wasn't my mom who answered the phone. It was my sister. I heard my sister's sweet little voice for the very first time since I last talked with them and my parents told me it had hurt for her to talk after what happened with the wreck. She had asked how things at school were going, and as she was asking that, I hear another noise. Mom had the phone, while my sister was throwing up. I hope and pray she's not getting the flu because that would be awful. The doctors are all coming in, mom told me to see why she's throwing up. She told me she needed to go but would update me as soon as she knew anything. I was appreciative of that, although I don't know if my heart could take another thing being wrong with my sister. I definitely wanted to ask how the surgery went but I knew now wasn't the time for me to ask these things. I mean how do you go and just talk as if nothing had happened in however many weeks it's been? I mean you can't really, not now anyway. I get a text immediately and it's from mom and it reads: My dearest petunia, I know how much you don't like when I call you that for a nickname but I wanted to update you on your sister. I was told by all the doctors that they will get the results in a few hours and we'll see if her throwing up was because of her just throwing up because of nausea or because she's getting some type of bug that might be going around. I'll update more when I know more. With Love, mom. P.S. Don't forget to take trash out and I'll notify to your principal that you won't be going in for school today, because with whatever might be going on with your sister, is well important for you to be near somewhere that I can just come and get you if I need to. I text back, that I'm fine to go to school, that I took the trash to the curb for our garbage man to get since he takes everyone's on trash pick up day. I also text back, my principal has been fine to let me take a call or text in school, in between classes so I'm not getting introuble. I finally text back, besides I want to go to school and I still have to do the practice today anyway. I love you mom, but please let me go to school. She texts back: Okay if this is what you really want, I won't stop you but I am still keeping you posted no matter what. P.S. Keep your phone on at all times, so I can reach you at school when I get the results back of what is going on with your sister. I know it's hard to not always be together, but hang in there. We'll be together again. I head off to school after I got ready and ate breakfast and went to my first class, which was science, and then after I went to science I had gone to all my regular classes and then went to the practice. I was in practice when all of a sudden I hear my phone buzzing. I try to ignore as I am trying to do the routine but I don't want to answer if it's a call from one of my friends asking about my sister when I don't know. So, I let it go to voicemail. Then as I go back to practicing the routine, it happens again.
Friday, November 15, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Three
Today the practice has gone well, and as for my sister's surgery the doctors don't know how she will be till she wakes up a little. My mom and dad told me they would update me, but their text said this: Your sister is out of surgery, doctors won't know much if she'll be able to walk or use her arms until she wakes up. Although the doctors are hopeful and we're too. It seems prayers do work and that the light of hope that you once had stared into has come back just a little. Keep praying and we'll update as soon as anything changes. Love, mom and dad. P.S. When you're doing the thing your sister got chosen for, make sure to do it with a smile on your face and cheer loud and cheer proud. We love you angel, and we know God is watching over all of us. I believe that I will do what they have asked and I'm thankful for what the doctors think is hopeful and that little light of hope, as we would just call it sunshine, is coming back into our lives, since my sister was involved in the wreck. I texted back thanks, and I'm so happy. They didn't text back after that. I knew they would be okay if I told the principal but before I could, the announcements came on. The principal had mentioned how my sister might be able to come home and that the doctors are hopeful that surgery was a success and that they wouldn't know if she is back to be able to talk better since her injuries had left her paralyzed. Before I could leave school, since it was another half day. I had my best friend Alisa come up to me and tell me how she is and has been praying for my family everyday and it is almost as if that the prayer she prayed has worked and it was a miracle given to all of us by God. Well see I do believe in God and I do believe God can bless us with miracles but what happens if the surgery didn't work? What if she will always be paralyzed and need special care and can never go back to what I know she loved ever since she was chosen for it? I mean sure if that happens, will I be angry? Yes, a little. Will I cry?Yeah, probably. Do I have a reason to not love or believe in God if it happens? No, I'll always love God and believe in Him because I always know there is a plan for each of us. So I told my friend goodbye and I went home. Soon after I got home, I decided to practice the routine some more. Then I got a call from my father. I am afraid to answer the phone, because I'm not sure what to expect. I hope that this is good news for my sister who has been desperately fighting for life, and I know that I should answer but I'm going to be honest with you, I'm afraid to answer, because I don't want any hope to be lost. I don't want what my mom and dad texted me earlier to be lost. I try to answer, and I wait till he picks the phone up and as I wait to talk into the phone and I wait for my dad to talk, I hear something. I can't tell if it's the tv in the hospital room or my mom singing but I definitely hear a noise in the background. I keep waiting for my dad to tell me anything but the phone is still remaining silent.
Thursday, November 14, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Two
I made my dad a ham and Swiss cheese sandwich which he enjoyed and told me, that if I'm tired to go to bed and he would go to bed in a minute. I told him goodnight and went to bed and said my prayers of letting God know that I wanted Him to heal my sister who was in the hospital. I wanted her to feel better and I wanted her to come home, so she could and would no longer be in the hospital. I said my prayers and after I said them, I drifted off to sleep. I just talked with my wife who was with our other daughter and she said that she was sleeping but still hurting from all the things that happened. I knew that this was hard for all of us because we had to be separated at different times. I told her goodnight and went to bed myself. The next morning, I had gotten up before my dad did and I decided to eat breakfast and get ready for school. I knew my dad was tired since he had just come from the hospital after being with my mom and sister. I finally left the house and went to school. I knew that when I got to school, people would ask a million questions about how my sister was doing and I didn't want to answer them, because there was no change, and then I got a phone call. I thought it was weird but mostly strange that I got a phone call before I could go to my first class of the day. I took the call and it was my mom. I answered hello, and on the phone she was crying and I told her to slow down and had asked what's wrong. She told me nothing was wrong, that my sister was going in for surgery and the surgery was for figuring out whether it would help her get some mobility in her arms and legs. I thought it would be a miracle if she could use her arms, hands, legs, and feet again. So my mom and I said a quick prayer together and hung up. I thought about calling my dad but then my mom just texted me saying she told him, but to tell the principal the news, and have the entire school pray for her, as this could be the answer to our prayers that we have been looking for. I went to the principal's office right away, and had asked to speak with the principal and so I did. I told him what my mom had said, and then he made an announcement over the school's microphone and speaker that after the announcement was made, we had a prayer of silence in honor of my sister, who would continue to fight for her life, no matter what the outcome of the surgery would be like or if it would even help her. We prayed that this surgery would help her and heal her, so she could come home and come back to school after she was through the healing process. My dad texted, shortly after we had prayer and said he was with mom now and he hopes that I have a good rest of my day at school and a good practice after school for what I know my sister has earned when I didn't earn it. I hope to tell you more about how that goes, but until then I need to go to class and you'll just have to wait and see how the practice goes and if my sister's surgery worked or not, on another day.
Wednesday, November 13, 2019
A Sister's Life Changing Experience Of Faith And Hope Part One
I was staring into the light of hope when all of a sudden I see a cloud coming over that light. I was afraid that if the light of hope disappeared that nothing would ever be the same again. Then something did happen, that changed my life forever. I was sixteen when it happened and my sister younger than me, had no clue that what happened of the thing that changed my life forever was going to be miraculous and forever life changing because the thing that changed my life was a new adventure. Let me start a little from the beginning of what I'm talking about. It all started in December of 2006 when I was just sixteen. I was having a bad day at school because I was outvoted in ever becoming homecoming queen and that made me sad. I was sure I was going to be homecoming queen and that I would be able to go to the dance with the person who made homecoming king, like me for who I am and that nothing would stop me from being the person I am today. My sister younger than me, she somehow becomes Christmas Spirit Cheerleader and when I say that I mean it's another name we have for someone who becomes captain of a cheer leading squad. I was so angry at my sister, because it seemed to just come very easy for her to make anything. I wanted to make something, but it seemed like all hope for me was coming to be a cloud of sadness. A sadness that even my mom calls a scary sickness where you're grumpy and gloomy because you think that what you're upset about now, might not be what you thought you needed. I didn't understand that or what she meant until I did. You see my new adventure and my miraculous life changing and forever changing adventure, was carrying on my sister's legacy. Now does that mean she passed away, as you read this, well of course not. I'm saying that my sister is in the hospital and fighting for life, because she was in a terrible wreck that has left her paralyzed from her neck to her legs, and has limited the use of her arms. I feel bad for my sister, because this isn't how I wanted things, because for me I would want to earn something instead of taking something my sister worked hard to get to. She's special to me and I don't want anything bad to happen to her. I pray for my sister everyday, asking God to heal her, so she can come back to school to do what she loves and until she's back to normal, I've been asked to take her place has the Christmas Spirit Cheerleader for our school. I went into the school the next morning and saw the uniform they were going to have my sister wear. I saw her name engraved on the shirt and the pom poms so colorful in the school spirit colors that she was going to hold and use at the pep rally come Friday. I know that so many people will think oh wait what is she doing in that outfit when it's supposed to be her sister. Well see here is the thing, I don't care what others might think because it's not about them and I'm doing it because my sister is fighting for her life. The only people who know are mom, dad, a few close friends and our school principal. So I went to my very first practice and learned the routine, and then I went home, since it was a half day today. We only get half days on certain occasions. Today was a special day, because it was parent teacher homecoming assembly staff involvement day and when I say that, I mean it's a committee my parents made in 2005 when my sister and I were just starting our first days of school, since the other years we had been home schooled. Then in December of 2006 as I've already mentioned, I had no way of knowing about my sisters terrible wreck till it was called to my attention by my best friend Lila who had heard from Cara, who had heard it from Steven, who then heard it from my dad, and then my dad who had it heard it from our mom that she was in a terrible wreck and resting uncomfortably, and had been paralyzed well you know the story. Anyway it was during that year that I could never imagine losing my sister, but following into 2007 this year, I've made it my goal to make her proud. So as I am home, I am practicing as we speak but taking breaks as needed to write how everything was started and I promise that as I write more you'll learn more about us and who we are. You'll learn more about myself and my sister who is continuing to fight for life that is precious. Her injuries are severe as the doctor said and she doesn't know if she'll be able to walk again. That troubled me as I want to see my sister be back as the Christmas Spirit Cheerleader. You see another perk about being this, is that you get to preform it at the Christmas Land Of All Things Beautiful Christmas Spirit Center on December twenty fourth and twenty fifth in front of thousands of people. My mom and dad are at the hospital with my sister, but told them not to worry as I would make sure the house was fine. When I say that, I mean I'll make sure I don't have any friends over, I won't answer the door to strangers, and I'll make sure to come home after school everyday and do what I need to with homework and practicing as much as I need to. My parents who aren't with me right now and are with my sister, and doing a video conference with all the other parents, teachers, and staff members to plan the best homecoming for all of us. Now it is 5:00 p.m. and I just finished doing the routine. My parents told me they would update me as needed. I am going to do my homework so I'll see you in a little bit. My parents just called me saying that there hasn't been any change with my sister, but she has been just trying to rest but it's hard because she has to lay flat on her back and needs help with feeding and drinking water. That made my heart break, but of course I wasn't about to let my parents know that so we hung up and I decided to go back and do my homework while I ate a turkey and cheese with tomatoes, olives, and lettuce with a nice garden salad and a glass of raspberry and strawberry iced tea. I know what you're probably thinking, what teenager at my age drinks iced tea, and has olives on a turkey and cheese with tomatoes, lettuce, on sandwich bread, and eats a garden salad. Well, see that's what they have served at our school, and most of my friends I sit with at lunch, eat it and when I told them I've never had any of that, they told me I needed to. So I did, and I absolutely loved it and it's delicious. It's one of my favorites, compared to grilled cheese. Anyway, my dad finally came home while my mom stayed at the hospital. My dad talked with me for hours about how if my sister couldn't walk or use her arms, that she would be in a wheel chair and need homeschooling care while she recovered from surgery if they needed to do it. He also mentioned how even if she goes back to school, she'll still be in a wheelchair and need specialized care and will be put in a classroom for people with different kinds of needs. My dad mentioned she can talk but it hurts her to talk, because of how things happened after that accident. Our dad mentioned that the cops are still trying to figure out why anyone would want to hurt my sister. The principal told my dad on the video call tonight, if what he told me were to happen, that they have a special program at our school that is designed for people who need help or for people with different needs. The school calls the program, The Special Education Of Kids That Can Make A Difference. They call it this because the kids with special needs at our school, are always smiling and never complaining over how things happened to them. For example, there's a boy name Daniel, but everyone who knows him calls him Danny. Anyway, he has Autism and Hydrocephalus which stands for water on the brain. Now Danny he has nonverbal autism which means he can't speak, but then again he has a tablet that allows him to communicate with others, especially with his teacher. Then there is a girl who was born with a severe case of Down syndrome and by age three had become blind. I know what all of you, who must be reading this may think, well how could you know all of this about two kids you don't even really hang out with. Well, I know this because my parents tell me and we know their families well, since they're our neighbors and their kids go to the same school as my sister and I. My dad told me that mom was spending the night because she didn't feel right leaving my sister alone at night. I don't blame her but I knew she would have been just fine in the doctor's care. Although my mom insisted that my dad come home, so that I wasn't alone at night.
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