A Sister's Life Changing Experience Of Faith And Hope Part Eleven

I waited till the doctor left the room to ask the decision for what was going to happen with my sister. My parents remain silent and my sister tells me. She tells me that she wants to do the study, she wants the doctors to find a cure for her rare bone disease and she wants doctors to find the cure for the other syndrome. She tells me that one of the things the doctors have explained to her is that the study will also help with the other one they caught early. She explained that this study might even have another study that can do a reverse cure study in Seattle Washington that would allow her to get back into a normal life, just like before she found out about her two diagnoses that she never knew she had. I ask about the risks for that one and she said the worst that could happen with doing something that far away is she could have a little bit of a mobility disorder that would limit what things she could do in life that wouldn't allow her to do some simple things like driving or cooking. I then ask about the benefits. She then tells me one in thirty million people like her who have done these before her, have succeeded and have lived to tell their stories, but half of those people who succeed still live with some of what they once had but the cure hasn't been found because these are just studies that don't necessarily cure you fully, but cure most, if not all symptoms that you live with. I feel as though I have been punched in the stomach and someone has pulled on my sleeve of my shirt to say, no matter what happens she would live some kind of a normal life but she's still going to be living with two disorders and maybe a third, if these treatments don't work. I try to stay faithful, and I try to stay hopeful but how is it that my sister can be so positive if she doesn't get to live a healthy normal life. I mean doesn't she want to get rid of these disorders once in for all. Then there was something that happened, a new person came into my sister's hospital room. They had a girl about my sister's age, and the girl began to talk about she knows what it's like to have the disorders my sister has because she has them herself. She tells my sister, no matter what she does, it won't reverse what you have been born with but it will help those who are researching to find a better cure. I know this sounds crazy, but she told my sister that if she does go through with what she wants to go through then remember three things. She told my sister to remember that you have to have faith that this study can help. You have to remember that hope is what will help you in the long run, and finally even if the study doesn't work out for you, not to let that get you down because you're unique in how God created you in His Image, and nothing is more important than that. She then told us how she's been a patient of this hospital for awhile now because her case is more mild than my sisters, but the medicine treatment my sister is having right now, will help build up good cells of my sister's immune system, so that if she is transported ten hours away today then she won't feel as nauseous to be sick. Finally, before the girl leaves she tells us that whatever happens today for any of us, remember God is in control and he knows what He is doing. He knows that there is a plan for everyone and she'll be praying for us, but she wanted to give us her email address and her home address so we could write to her, and keep her in the loop of what was going on with my sister. We then told her goodbye and we all prayed with my sister at the moment. The doctor came in and said the ambulance was ready to transport my sister to the one hospital that had been ten hours away doing the research study. My dad went with my sister this time, and my mom and I decided to go home. I send my very first email to the girl, who was with her mom not that long ago in my sister's hospital room and tell her that my sister is about to do her very first transplant reverse study at LiliamVille Hospital and the girl quickly replies back with praying now.