This blog is about most of what I remembered from childhood to growing up, and some encouragement, reviews of movies and shows, and just other fun things that I like to write about. I'm thankful to continue this blog to share things with those who read it and those who see it because I want to share more. I'm grateful to share what I hope will give people joy and happiness when they read this.
Wednesday, November 27, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Fifteen
The movie is over and mom isn't on the couch anymore. Blake and I decide to go see where she would have gone. Finally, we find in her room fast asleep. So we decide that it's time for both of us to get to sleep. The next morning, I don't have school so Blake and I decide to go to our local hospital to see the girl that we've been telling him about. I don't really know the girls first name because I never thought to ask. My brother much older than I, ask if we could see a friend of ours. The nurse tells us to have a seat. She calls a room that must be the girl we met that day, when my sister was here. The nurse calls back to the desk. She tells us that the mom will see us, in a minute and to have a seat. I know this can't be good news if she won't even let us see her daughter or worse the transplant didn't work. My brother turns to me and wonders what is wrong and even asks who I am talking to. He must think I'm crazy if he hasn't been reading the documented journey I've been writing on Inentala Blog, which is a blog I created myself. I had decided that if I was going to write something, I might as well begin our journey. I know, I know it sounds like a hallmark type thing because of something that you would see in a movie. Although, I don't think it really matters because if you're speaking from the heart then please know this is my way for giving our story but mainly my sister's as well. The mother of the girl comes down to us and it looks like she didn't sleep at all.I don't even have the time to ask what's wrong or why it seemed like she was tired, because she had already been crying and hugging my brother. I don't understand at first but now I think I do. Well, at least I think I do. She then starts telling us how the operation for her daughter was a success but there was a setback after the surgery was over. She tells us that the setback was when they tried to wake her up after it was over and she didn't. She should have woken up but something happened they say that her daughter went into a sleep induced coma because whatever was happening, and they will try to wake her up in a few, and hopefully no side effects are to come after she gets out of the coma. The doctor comes to find the mother right away. My brother Blake goes with the mom, while I wait to hear the news. While I wait, I see I got a missed call from my dad. I call him back. My dad answers after the second ring and tells me my sister is getting her first treatment done in this study. They take a blood test to see if the levels of calcium and vitamin d have progressed into better numbers and as for the other syndrome, they doing a water fluid hydration iv medicine test to see if the symptoms of the first lessen and become less frightening and non severe. I tell dad that sounds good but risky. He then tells me that as that may be, it could be a step closer to finding a cure for both syndromes. Which is the purpose of the reverse cure study they have at the hospital she's in. I guess if they didn't do these types of studies then they wouldn't be called research studies for a reason. I tell my dad to tell her I say hello, as I need to go and hope to talk with them again. He says goodbye and I go over to my brother and the girl's mom. I know something isn't right by the way my brother is comforting the mom. We all sit down together, and the mom gets a hold of herself and starts saying how her daughter woke up. I think in my head that's great, so then what is the bad news. She goes on, that her heart is fine. I still think in my head, another piece of wonderful news. I continue to listen though. She then says that after she woke up, her speech was a little delayed and had trouble with speech. She shortly then says that her daughter is going to need a speech therapist to help her daughter regain her speech and even though her new heart is working fine, she is still going to have somewhat trouble with things. She won't be able to drive because of what she has gone through, but she's going to be fine. I give the mother a hug and I say, I'll be praying for all of you. My brother does the same and we leave. We finally, arrive home and our mom is waiting for us. Blake and I exchange looks at each other.
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