This blog is about most of what I remembered from childhood to growing up, and some encouragement, reviews of movies and shows, and just other fun things that I like to write about. I'm thankful to continue this blog to share things with those who read it and those who see it because I want to share more. I'm grateful to share what I hope will give people joy and happiness when they read this.
Sunday, November 17, 2019
A Sister's Life Changing Experience Of Faith And Hope Part Five
I answer the second time it comes around and I gulp. I gulp because I'm fearing the worst right now. I'm fearing that my sister has either passed away, or that the results have showed something different. I try to be spirited and admirable. I try to be brave, and I try to be positive in all of this going on. I know before I answered the second time, I saw the missed call was from my mom. The second time before I answered finally, it was from my dad. I still remain silent as my dad tells me the reason mom was trying to get a hold of me was because there was a little bit of good news and that there was some bad news. I gulp, and think of the worst possible scenario when I hear that there is some bad news. I sigh when I hear there is some good news. I wait for him to tell me good news and he says the bad news first. I definitely fear the worst and I sit down. I know what you're probably thinking, stop saying you fear the worst when you said that already but you know in any situation, you don't know what people go through till you've been through it yourself and you know how to deal with the situation. I just pray my sister is fine and she hasn't left us and that she can walk, and use her arms and hands. My dad tells me that my sister has CaluianiSyndrome which means that her body can only take so much food and water, that she needs a iv treatment to help her but the good news is that they have been doing therapy with her since her accident and she can walk and use her hands and arms. She can come home and go back to school. She'll be able to do her Christmas Spirit Cheerleader performances and practices. Although my dad said they caught the CaluianiSyndrome early, so it can be treatable but there are some side effects to it. I sigh in despair because I really thought since they caught this syndrome early that she would be okay and nothing bad could come from any of this. My dad told me that some of the side effects of CaluianiSyndrome can cause tiredness, vomiting, possible to catch pneumonia if outside for long periods of time, can cause a skin irritation of a breakout of hives if having any dairy products. The syndrome also has one main huge side effect, that my dad reads and this is the one I dread, but I don't let him know that. He reads to me that the main huge side effect of this syndrome is that people can pass away from it, but if caught early it can be treated with an iv treatment, so that it will help some symptoms of nauseousness, or vomiting, and if it is caught early, that people who live with this syndrome, can live a long time, but if gets left untreated, and most cases for this syndrome normally go unknown, then they can pass away sooner than having a long life expectancy. I cry because there are tears of happiness but I also know that my sister is going to fight through this and she is going to do everything in power to not let this news, get her down. My sister's name, as I've not told you is Penelope Ann Johnson, and my name is Elena Kate Johnson. My dad tells me that the other news that he has is, they will be giving my sister the first iv treatment in the hospital today, and then that should give them time before supper or before I get home from school today, that they should be home. I am crying more tears of happiness because this is making me thrilled to know my sister is going to be alright. Does this mean she's out of the woods yet? No. Does it mean she has more work on getting better? Yes. I believe that some light of hope has come back, into our lives and that our faith is getting stronger and I feel like this is a new beginning. I feel like things are becoming a wonderful reality and that this is the best news that we could have ever received tonight. In a few ways, I feel relieved, and in other ways I feel sad because of everything my sister's been through. I ask if she can talk well now, and my dad doesn't say anything because the phone goes silent, and I see mom's calling me from her phone, and that dad has hung up. I would love to know what goes through my parents heads as this happens, but my mom's connection on her phone is silent and I see she has hung up as well. Then I see an unknown caller comes up on my phone. This time, I'm not sure what to expect and I don't know if I should answer because it could be a prank call or it could be someone who wants details on my sister. All I know is that I answer and what I hear on the other end is amazing, but why it's amazing and the reason I say that, is for another time for you to know and find out. I will say that everything you've read so far about us, has been really difficult.
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