Sunday, November 24, 2019

A Sister's Life Changing Experience Of Faith And Hope Part Twelve

We get home and mom and I have supper then the phone rings. Mom quickly answers the phone and it's dad. I can only imagine what he is calling to tell us. I stay calm and look down at my plate of food, so mom doesn't see that I'm nervous as a little kid who has just received a bad grade or got in trouble. My mother gets off the phone and finally comes back to the table. I look up and see an expression on her face that seems happy but also stressed. I ask her what the news is and she slowly takes a breath and then answers with that the news is good and that they got there safely. She also mentions my sister is at the hospital waiting to be in a room where they will start the transplant reverse study. I sigh in relief because I was hoping that the answer was going to be things were good. We finish our supper and mom does the dishes. I go and check the email from when the girl and I emailed before and she says she got a little report from my father about my sister. I write back that it's wonderful they made and I can't wait to have her back with us again. She quickly writes a back that no matter how big or small that my sister, even though she just met us all, that she's a fighter and she won't give it up till God calls her home. That hits me like a brick, and when I say that I'm saying that because I can't imagine anything happening to my sister. I mean she needs to be okay. I write back to the girl and say to her thank you for praying, and I'll be praying for you as you go through this. She says thank you then I know she stopped because she didn't say anything back after that. I love my sister and I hope that this first research study for a transplant reverse study works for her. I don't want her to have anymore surgeries, and I certainly don't want her to go to Seattle Washington to go through what she was telling me. So I'm going to pray that this works for her, so she can go to school soon, and do what she loves because it is now December 13, of 2007 and I know how badly my sister wants to preform during Christmas Eve and Christmas Day as the Christmas Spirit Cheerleader. I want the first day to be a success and I want her to be okay, because she is like a best friend and if I were to lose a best friend, well it would be sad because I can't imagine my life without her. I love her. The phone rings a second time. This time I answer and it's dad. I am shaking, I can barley catch my breath, but I do and in a shaky voice I say hello. I wait for my dad to reply and when he does I remain silent till he says something that will give me a sense of relief and take the fear and worry away from me and my body. My dad then speaks and tells me my sister got into her room and he stepped out for a bit because the doctor and nurse are treating her with a medicine called Rioelcolian that will take hopefully the bad symptoms from my sister's first syndrome away, and they're treating her with a second medication that involves a second iv that allows her body to fight from getting any infection and will hopefully get rid of the bad symptoms of my sister's second syndrome that she was born with. I ask my dad the name of the second medication and he tells me it's called Juliolicarliantibody and the reason it's called that is because people with the rare bone disease, can get infections with there legs, or they can develop the flu really quickly. He then tells me that my sister is a room that only allows family members to come in and out of because it's a research study that involves 24 hour care around the clock. My sister has to have somebody who will not only take care of her, but make sure she can be able to handle the medication that is being fed through iv's. When I say this quietly to myself, I cry and can barley speak and my mom knows it. So she takes the phone, while stroking my beautiful hair and I sob softly while my dad continues to tell mom that she is fighting like a champ. She isn't giving up and is determined to fight through this to be better and be home before Christmas Eve and Christmas Day. She is fighting to get better, so she can preform with what she knows she was chosen for. Mom tells dad that the school had asked me to do something and he told her to tell me congratulations, and that hopefully it won't be too much longer before we can be together again. Finally, they hang up and my mom wipes the tears away and tells me that everything is going to be good because as long as we have faith and hope, nothing is going to stop what is happening right now. When my mom said this, I knew she meant we need to trust that God is in control of it all. I do trust him, and I know that He has a plan for all of us but it's hard to know that faith and hope could help in a situation like this, when my sister and dad are ten hours away from mom and I. I really do hope we can be a family again soon, because I miss everything about having them here right now.

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