Hydrocephalus Awareness Month

Today is the seventh day of Hydrocephalus Awareness Month and I wanted to share how it's important to know about Hydrocephalus because so many people don't know what it is and have never heard of it. It is our job to educate those who don't know about it. I want to share what a shunt looks like. This was the best photo that I could find of a shunt looks like. This is how big a shunt is along with the tubing. This is what is inside my Hydrocephalus Shunt Bear. People can pass away from it. Those who survive are fortunate and lucky and those who are not, then that's who we should be praying for. I saw an article or an update about a girl who was about to have her 70th brain surgery. Some people can go through more brain surgeries than others. I had once read an article from a group that also helps people with Hydrocephalus, where another girl was about ready to have her 121st brain surgery. The people who have been through more surgeries and have had to have more surgeries to have their shunt replaced, probably feel like that this isn't fair and why should we have to deal with all of this, while others living with the same condition as us, get to not go through as much as we have to deal with. I am sure many people with Hydrocephalus may feel that way, but I want them to know that they are not alone. We are all going through the same thing, even if we don't know what it's like to go through so many brain surgeries. September is Hydrocephalus Awareness Month and It Matters. It matters to me and to millions of others who are living with it. I am glad that I am educating people on Hydrocephalus because it gives me the chance to learn along with you, each day, something new about it. Like others living with Hydrocephalus, there is stuff I can't do and then there is stuff I can't do. I can do things that I enjoy and there are things I can't do like sports. I am ok with not doing sports or driving a car like others with Hydrocephalus can, because even though it would be nice, I don't really care that I can't drive a car because then I don't have to worry about other things. Which does not mean, if you are one of the people who can do some of these things, that I have mentioned tonight, then that is great because it should be something that you like to do, and you should have fun. I know that some people have trouble making friends, and I am one of those people. I would say that for the most part though, I do have some friends that I talk to and I know people with Hydrocephalus that probably feel the same way, but we are never alone in any of this and I can not wait to share more with you tomorrow but please enjoy tonight's and today's photo. I hope you will continue to learn more about what this month is really about as I do the posts and share them with you. September is Hydrocephalus Awareness Month and It Matters. So tell someone and make sure they understand what so many people don't know and so they can learn about it too.