Friday, September 23, 2016

Hydrocephalus Awareness Month

Today is the twenty third day of Hydrocephalus Awareness Month and today I would like to talk about those who have Hydrocephalus. People with Hydrocephalus can get headaches, and I could give you a lot more symptoms, but that's just one of them. People who also have hydrocephalus can pass away from it and those who have it can survive. Many people with Hydrocephalus have had to go to the hospital because of their shunt either quitting, malfunctioning, or having it be infected. A person with Hydrocephalus who has a shunt, of the things I have mentioned about what can happen to the shunt, those things can happen but one thing that doesn't happen is the people who have Hydrocephalus don't quit or give up. Another thing people with Hydrocephalus can have are seizures. So many people don't know what Hydrocephalus is and it's our job to educate them and tell them about it. I like doing these posts because it makes feel good knowing that I am helping someone understand what this month is about and why it's important to learn about Hydrocephalus. I hope that these posts have helped you and someone else learn about Hydrocephalus. I hope that helps you and encourages you to want to learn more about Hydrocephalus. Hydrocephalus Matters. Awareness Matters. People living with Hydrocephalus Matter. There is no cure for Hydrocephalus. The only treatment for it is brain surgery, which requires having a shunt put in. More and more people who live with Hydrocephalus have to go to the hospital to get their shunt replaced. It's also a fact and it's true, because I see it every time from a Hydrocephalus group I follow when they post it, that more people have had more brain surgeries than birthdays. I hope that people will want to learn more about this month and want to know why this month matters. I wrote a song for Hydrocephalus Awareness Month and I feel like this song is good and it is a song that talks about everyone who has Hydrocephalus including me. September is Hydrocephalus Awareness Month and It Matters. Hydrocephalus Always Matters. This Month will always Matter. Awareness will always Matter. People like me who live with Hydrocephalus each day, matter always. At this time I would like to share my title and lyrics of my song that I wrote with you. The title is called A Battle I with other's face. Here are the lyrics: When there's a day I'm feeling down I just keep my head held high. I'm doing good, while others like me are facing a battle. There's no cure for the struggle we face, but we don't have to go through it alone. So I just gotta keep going on with the battle I and others face. If there was ever a time where people like me felt left out, I say to them that you don't have to feel that way, because you're not alone. I try to fit in with other kids, but they don't understand, maybe they would if they took the time to listen why. Sometimes it's hard, but that's ok because there are others that will help you through it all, along the way. Any other time, I'm trying to be strong, but now I know that I don't have to face all of this alone. So when others like me are feeling down, we just have to know and trust that everything will be okay. We have to be strong and have some faith that we'll have God and others too, help us along the way. Our journey isn't over and we'll keep fighting till the end. We might be strong, but you never know how strong you are till be strong is the only choice you have. Being brave is okay, but sometimes you just need someone or a friend that will listen to what you have to say. I am brave and I am strong, but I know that I don't have to fight this battle by myself. No matter how far or where you are, just to let you know that there will always be someone or somebody who cares. The people in your life and mine will always be the ones by your side and never leave, because they are going to support you and I every step of the way. Now there is one part in this song that I used from one of my Hydrocephalus t-shirts that I had gotten from a Hydrocephalus group, who has helped people with Hydrocephalus. I can't wait to share something different tomorrow with all of you, but until then please enjoy today's post about Hydrocephalus.

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