I went to a rally for medical research in Washington D.C. for Hydrocephalus and for other diseases that don't have cures. On Wednesday they talked about training and what was going to happen for the rally day kickoff on Thursday. Later that day on Wednesday we had a reception in the Kennedy Caucus Room which was very cool. I got to meet with a girl who had the same heart problem as me, and even got to see miss America. On Thursday I got to meet with some congressmen which was... really cool because I got to meet with David Joyce, I met with Brad Couts, Sherrod Brown, and others that couldn't make the meetings. Then on Friday we didn't have any more meetings so we got to relax, and on Saturday we went to dinner, with my aunt, and I got to meet two of her friends and got to see one of her friends that I had already met when I was in Washington D.C. for my 7th and 8th grade trip from a long time ago. Next on Sunday we had left Washington D.C. and drove to come home. Finally, we are home and I am glad to be back, so that I can share what it was like to be in D.C. with my family and friends. The End. Also I was glad that I got to do this, because before we left yesterday and got home, I met this adorable little boy named GianCarlo and I was very happy to know that my video I made for my senior year of high school has inspired so many kids, teens, and even families. I just hope that one day there might be a cure, because the only treatment for hydrocephalus is a shunt and that's it. September is Hydrocephalus Awareness Month and it matters to me because it doesn't have a cure yet.
When I was in Washington D.C. it was absolutely amazing to meet people, families, and even more amazing to know that my video has helped them and that some of the people from the hydrocephalus association are using it in training, and I was just very happy to know that families like the one that I had met on Sunday before coming home after having a good time meeting them in person, were glad to know that my video has helped them, and their adorable little boy. I think that being at the rally for medical research was a good experience for me and hydrocephalus matters and because September is hydrocephalus awareness month and this month matters. I hope that if there was a conference or something like this, that I would be able to go to either one or maybe even both. The End. I have hydrocephalus and it doesn't have a cure.
September is Hydrocephalus Awareness Month And It Matters To Me Because I have it and so many other kids, teenagers, and adults have it as well. Not only do so many people besides me have it, but there is not a cure for Hydrocephalus yet and the only treatment for it is having a shunt put in.
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