Wednesday, September 7, 2016

Hydrocephalus Awareness Month

Today is the seventh day of Hydrocephalus Awareness Month and I wanted to share how it's important to know about Hydrocephalus because so many people don't know what it is and have never heard of it. It is our job to educate those who don't know about it. I want to share what a shunt looks like. This was the best photo that I could find of a shunt looks like. This is how big a shunt is along with the tubing. This is what is inside my Hydrocephalus Shunt Bear. People can pass away from it. Those who survive are fortunate and lucky and those who are not, then that's who we should be praying for. I saw an article or an update about a girl who was about to have her 70th brain surgery. Some people can go through more brain surgeries than others. I had once read an article from a group that also helps people with Hydrocephalus, where another girl was about ready to have her 121st brain surgery. The people who have been through more surgeries and have had to have more surgeries to have their shunt replaced, probably feel like that this isn't fair and why should we have to deal with all of this, while others living with the same condition as us, get to not go through as much as we have to deal with. I am sure many people with Hydrocephalus may feel that way, but I want them to know that they are not alone. We are all going through the same thing, even if we don't know what it's like to go through so many brain surgeries. September is Hydrocephalus Awareness Month and It Matters. It matters to me and to millions of others who are living with it. I am glad that I am educating people on Hydrocephalus because it gives me the chance to learn along with you, each day, something new about it. Like others living with Hydrocephalus, there is stuff I can't do and then there is stuff I can't do. I can do things that I enjoy and there are things I can't do like sports. I am ok with not doing sports or driving a car like others with Hydrocephalus can, because even though it would be nice, I don't really care that I can't drive a car because then I don't have to worry about other things. Which does not mean, if you are one of the people who can do some of these things, that I have mentioned tonight, then that is great because it should be something that you like to do, and you should have fun. I know that some people have trouble making friends, and I am one of those people. I would say that for the most part though, I do have some friends that I talk to and I know people with Hydrocephalus that probably feel the same way, but we are never alone in any of this and I can not wait to share more with you tomorrow but please enjoy tonight's and today's photo. I hope you will continue to learn more about what this month is really about as I do the posts and share them with you. September is Hydrocephalus Awareness Month and It Matters. So tell someone and make sure they understand what so many people don't know and so they can learn about it too.

Tuesday, September 6, 2016

Hydrocephalus Awareness Month

Today is the sixth day of Hydrocephalus Awareness Month and today I wanted to share a picture of people with normal ventricle's looks like and what people with Hydrocephalus who have enlarged ventricle's looks like. Hydrocephalus stands for water on the brain. It doesn't have a cure and the only treatment is to have a shunt put in. Shunts can malfunction, they can quit, and the shunt tubing can break. Shunts may quit, but we don't. Millions of people living with Hydrocephalus have to go through more surgeries for a new shunt or end up in the hospital because something might be wrong with their shunt. For the people who don't have to always go through that, we can be fortunate and lucky that we don't have to go through that everyday. Some people can pass away from Hydrocephalus and some people don't. For the people don't and survive then we should pray for the families who have lost a loved one from this condition. September is Hydrocephalus Awareness Month and it matters. It's important that we learn about Hydrocephalus this month, because so many people don't even know what it is and it's our job to tell others about Hydrocephalus. It's our job to help spread awareness. Here is the photo. I hope as you look at the picture and see the difference someone who has Hydrocephalus and someone who doesn't makes a difference. I hope as I continue to do these posts that it will help educate you and want you to continue to learn more about it each day. September is Hydrocephalus Awareness Month and It Matters to me and to millions of others. I can't wait to share something different tomorrow, but until then please enjoy the photo and tell someone about what millions of people like me, are living with each day. Help spread awareness too.

Monday, September 5, 2016

Hydrocephalus Awareness Month

Today is the fifth day of Hydrocephalus Awareness Month and I am going to show a new video that talks about Hydrocephalus, and that will explain what someone who doesn't have hydrocephalus and someone who has hydrocephalus because in the video it will show an image of what that will look like. Hydrocephalus Awareness Month Matters and it matters to me and to millions of others who are living with it. Yesterday I may have shared some facts from two photos I found on Google, but today I decided and felt like it was very important to show you this video, because I am hoping it will educate you on Hydrocephalus. I hope that it encourages you to tell some about what this month is about and why it's important to help spread awareness this month. Hydrocephalus doesn't have a cure. So many people don't even know what Hydrocephalus is, and they don't know what Hydrocephalus Awareness Month is. The only treatment for Hydrocephalus is a shunt. I am doing these posts so that I can educate people who don't know, and so that people will want to continue to learn about Hydrocephalus, and what this month is about. Here is the link for today's educational Hydrocephalus Awareness video. https://www.youtube.com/watch?v=6EWtiAoc3Sw I hope that as you watch today's video, that you will continue to learn and be educated on Hydrocephalus. I can not wait to show or I should say, tell you something different about Hydrocephalus, but until then please enjoy today's video and I hope that as you watch it, you will learn something from it. I am excited to do these posts each day, because I feel that it helps not only you learn something new about Hydrocephalus but it also helps me learn something new as well. I feel more people need to know about this condition because it's important to learn more about what people go through. Well until tomorrow, I really do hope that this video will help you learn about Hydrocephalus and I hope you will be able to see in the video what the difference is, between some with Hydrocephalus and someone who doesn't have Hydrocephalus. September is Hydrocephalus Awareness Month and it matters. So tell someone about Hydrocephalus and tell someone about this month, so they can know.

Sunday, September 4, 2016

Hydrocephalus Awareness Month

Today is the fourth day of Hydrocephalus Awareness Month and today I wanted to tell you what I found on Google. The first question that I found from a photo on Google is this: Why a shunt? The answer is simply this: Fluid pressure can cause headaches, vision loss, nausea, vertigo, intracranial hemorrhage, unconsciousness, and death. Here is another thing from a photo I found on Google, in the year 2000, about $1 billion of U.S. health care expenses were related to hydrocephalus shunt procedures. So as you can see this month is important and this is why we need to tell others about Hydrocephalus. This month matters and the people living with Hydrocephalus matter. There are many even more than a thousand people who don't know what Hydrocephalus is. So by me doing these awareness posts each day, I am hoping that it will educate you and help you understand more about it, and that you will be able to learn from the posts that I do, and maybe even want to tell someone about Hydrocephalus. Hydrocephalus doesn't have a cure and the treatment is a shunt. I feel by doing these posts that I am not only educating people, but I am also helping them learn about Hydrocephalus, and I am also continuing to learn something new from these posts as well, because it will help me and it will help you to learn more about this condition each day. September is Hydrocephalus Awareness Month and it matters. I can not wait to share a new post with you tomorrow and as you read this and learn about what I have shared with you today, I hope that it encourages you to tell someone about Hydrocephalus, I hope it encourages you to tell people what this month is about, and I hope that you will want to spread awareness by supporting millions of people who are living with Hydrocephalus. Some people pass away, and some people can survive and continue to live with it. For those who survive, they are fortunate and for those who pass away from it, then that is who we should pray for, because any time anyone passes away from Hydrocephalus, it's sad, but that doesn't mean we can not help by comforting their family or helping them in a way. So today, as you read and think about what has been said, think of ways you can help spread awareness and think of some ways, you can help those who are living with Hydrocephalus.

Saturday, September 3, 2016

Hydrocephalus Awareness Month

Today is the third day of Hydrocephalus Awareness Month and yesterday I shared a video with you and today I am going to share more than one video with you because I feel as we learn about what Hydrocephalus is, the more people will learn and be educated on what this month is really about. So here is the link to the first video. https://www.youtube.com/watch?v=AgzZAwI47zc Now here is the second video link. https://www.youtube.com/watch?v=KE4Z3a05kg0 here is the third video link. https://www.youtube.com/watch?v=fJatSLilfXI and here is the fourth video link. https://www.youtube.com/watch?v=h2_JEDTp3tg These videos help us and teach us about Hydrocephalus. September is Hydrocephalus Awareness Month and I feel we need to tell people about it. This month matters. It matters to me and to millions of others going through the same thing. I hope as you watch each video today, that you will learn something from it. I hope that it inspires you to tell someone about Hydrocephalus. I hope that you will continue to learn something each day from the posts that I do, because this month is about Hydrocephalus, it's about those who are living with it, and it's about spreading awareness, so that others who don't know what Hydrocephalus is, will learn about it and so that we can tell them and help them understand what this month really means. I am fournate and grateful that I do not have to go through what others have had to. There are people with Hydrocephalus who have to go through more brain surgeries then most of the people who are living with it, have to. I feel bad that the people who have to go through more surgeries than most, and I feel bad and sad that most people who have hydrocephalus pass away from it. Some hydrocephalus cases are mild, and some more severe. Some people have to be in hospitals to have their shunt replaced because it quit or malfunctioned. We need to tell others about this condition, we need to spread awareness this month, and we to help educate people who don't know what it is. I think the more people know about Hydrocephalus, the more people are going to understand it better.

Friday, September 2, 2016

Hydrocephalus Awareness Month

Today is the second day of Hydrocephalus Awareness Month. I thought I would share a video about what a shunt is. This video will not only explain what a shunt is, but it will also explain  a little about what hydrocephalus is, and the person also talking in the video will also give you some more details and explain what can happen and show you some diagrams of what someone without Hydrocephalus and someone who has Hydrocephalus, of what the brain would look like. I am hoping that today's video will help you learn more about what this month is really about and why it's important we continue to learn about Hydrocephalus. September is Hydrocephalus Awareness Month and It Matters. I will be doing a post each day so that you can continue to learn more about Hydrocephalus. So many people, have no clue or idea what it is. What I mean by that is, if you were to go up to someone and ask them this question: Do you know what Hydrocephalus is or have you ever heard of a condition called Hydrocephalus? The answer for them would be this: No, and what is it? They would answer with no, and they would ask what it is, and that's where we would step in and tell them what millions of people like me are going through. People can pass away from Hydrocephalus and many others, each day all around us, even if they don't live in this state, are going through surgeries to have their shunt replaced, because of the shunt failing or malfunctioning. I read an article once from a Facebook page that also helps people with Hydrocephalus, and there was a girl who had 120, and soon to be her 121st brain surgery, and all I could think was I am very lucky that I don't have to go through that many. I mean if you think about it, those of us living with Hydrocephalus could have 1, 2, 3, 4, 5, 6, how ever many surgeries and then there are those who could have more  than the numbers I had mentioned and those are the people we should pray for because I and others have been lucky enough to have only a few surgeries and the rest of the people living with Hydrocephalus have to go through more each day. Here is the link to the video and I hope you will learn from it today. https://www.youtube.com/watch?v=bHD8zYImKqA I can't wait to share more tomorrow with you, but for now please enjoy watching today's video, and learn about Hydrocephalus for the second day.

Thursday, September 1, 2016

Hydrocephalus Awareness Month

Today is September 1st, which means it is the first official day of Hydrocephalus Awareness Month. Hydrocephalus Awareness Month is something people need to know and learn about. So many people like me, are living with Hydrocephalus and there is not a cure for Hydrocephalus. The only treatment is a shunt. Why Hydrocephalus Awareness Month is important to me. Hydrocephalus Awareness Month is important to me because, I feel like I need to help by educating those who don't know what Hydrocephalus is, by trying to help them understand what it is. There are so many people who go through more brain surgeries for a shunt, because of the shunt failing. There are also many people who live with Hydrocephalus, that what most people don't understand is that you can pass away from Hydrocephalus. I am thankful that I don't have to go through shunt surgery or have to worry about what others who have Hydrocephalus had to go through or have been through. Learning about Hydrocephalus is very important because there are people who don't know what it is. September is Hydrocephalus Awareness Month and it matters. It matters to me and it matters to everyone else who is living with it. I like many others was born with Hydrocephalus and do you know that there are different types of Hydrocephalus. One of different types of Hydrocephalus is, Normal Pressure Hydrocephalus. Kids, teenagers, just don't have Hydrocephalus, adults have it too. Some adults have Normal Pressure Hydrocephalus, and let us not forget that some babies, not all but some of them can be diagnosed with Hydrocephalus after they are born. It is very important that we learn more about this, during this month and basically every day, because the more people learn about it, the more people will understand what I and so many others are going through. I hope that you will continue to learn something, each day, because I will be doing another post about Hydrocephalus each day. So as it is awareness month, I hope you will learn about it and I hope from what I post differently each day, will help you learn more, of what this month is really all about.