This blog is about most of what I remembered from childhood to growing up, and some encouragement, reviews of movies and shows, and just other fun things that I like to write about. I'm thankful to continue this blog to share things with those who read it and those who see it because I want to share more. I'm grateful to share what I hope will give people joy and happiness when they read this.
Wednesday, September 30, 2015
Hydrocephalus Awareness Month
It is the thirtieth day of Hydrocephalus Awareness Month and I would like to share what I have learned over the thirty days of doing these posts. What I have learned from doing these posts is, that more people tend to read them and like them after I post them and then post them on Facebook. I've learned that I am helping people understand and educating them on what Hydrocephalus is. I feel that talking about it and writing about it has helped a lot of people understand what people like me have to live with. Hydrocephalus doesn't have a cure but it needs one. The only treatment for it, is a shunt. September is Hydrocephalus Awareness Month and It Matters. People like me living with It Matter. I hope you have enjoyed reading these posts, and I am glad that I can share them with you. I may continue doing these kinds of posts because it seems like, that's what keeps my followers or other people I don't know who may have found my blog interested in reading it. Help find a Cure. Spread Awareness and help someone understand what Hydrocephalus Is. Hydrocephalus Matters. I do too, along with everyone else like me who are going through the same things I am. Remember this, It is sometimes a struggle for those like me to have to go through surgeries so many times because their shunt malfunctioned. I am thankful I don't have to go through that many but for those who do, we can pray that they won't have to go through that again. Also remember for those who are like me, it is also hard for us to make and sometimes keep friends. That I think is hard for me, because I feel left out sometimes. I'm pretty sure that kids like me feel that way too, sometimes. This Month Matters.
Tuesday, September 29, 2015
Hydrocephalus Awareness Month
Today is the twenty ninth of Hydrocephalus Awareness Month and I thought I would share a poem I found on Google. This Month Matters. Hydrocephalus doesn't have a cure. It needs one. Here is the poem. I thought this was important to share with you, so many people don't know What Hydrocephalus Is. I think people need to know why this Month Is Important to Me and to Others who live with It.
Monday, September 28, 2015
Hydrocephalus Awareness Month
Today is the twenty eighth day of Hydrocephalus Awareness Month and I want to share a video I found on YouTube with you, called Hydrocephalus best lecture. https://www.youtube.com/watch?v=KE0vIItZJEk I thought that this video was important to show you. I hope that you continue to learn more about why this Month Matters to me and to everyone else who is living with Hydrocephalus. September is Hydrocephalus Awareness Month and It Matters. I am glad I am sharing these posts with you because I think people need to learn more about Hydrocephalus. I think they need to know more about why this Month is Important and why It Matters. Hydrocephalus doesn't have a cure yet, but It needs one. Help spread Awareness and Help find a Cure for It.
Sunday, September 27, 2015
Hydrocephalus Awareness Month
It is the twenty seventh day of Hydrocephalus Awareness Month and I would like to share three videos that talk about what epilepsy and seizures are because I feel that this was important to share with you. https://www.youtube.com/watch?feature=player_detailpage&v=6zXFUIjY5xU This is the first video. https://www.youtube.com/watch?feature=player_detailpage&v=3QLkgA08eIc Here is the second video. Lastly here is the third video. https://www.youtube.com/watch?feature=player_detailpage&v=21hJXrKxo_g I feel that these videos will help you understand what epilepsy is and what seizures are because I feel like people need to understand what people like me have to go through. So many people have tried to ask me in the past what seizures are and I could never explain to them because it was hard to explain to kids that didn't understand, even when I did try. You see my seizures usually happen after I fall asleep and they don't stop on their own. I am hoping that these three videos help people understand more about epilepsy and about seizures. September is Hydrocephalus Awareness Month and It Matters. Hydrocephalus doesn't have a cure. It needs a cure though. Help spread awareness about Hydrocephalus, and tell someone about it. This Month Matters to me and to others who are living with it. I think more people need to know what Hydrocephalus is and I think they also need to know why this Month Matters and why It Is Important.
Saturday, September 26, 2015
Hydrocephalus Awareness Month
It is the twenty sixth day of Hydrocephalus Awareness Month and I would like to share about a blue gemstone that happens to be my birthstone and it's the color of Hydrocephalus Awareness Month. I think it is very pretty and I can't show it to you, but if you saw what it looked like, you would think it's beautiful. I got it last night, and though it may be on a clear stick, it's still beautiful, and something I will always keep. The place where I got it from, was the Mexican restaurant in Willard. Now a other thing I would like to mention in this post is people who are like me, have a difficult time with some subjects in school. I had some trouble with math and science and I still do. Now I am out of school, but for the kids who are like me in school still have trouble with things and subjects, and even homework. September is Hydrocephalus Awareness Month and It Matters. Tell Someone about Hydrocephalus, tell them why this Month is Important. Hydrocephalus doesn't have a cure. It needs one though.
Friday, September 25, 2015
Hydrocephalus Awareness Month and Happy Birthday Grandma
Today is the twenty fifth day of Hydrocephalus Month and I thought I would tell about how sometimes people like me, have trouble making friends. I have some friends but not very many. There are people like me with Hydrocephalus, who have trouble making friends. It's not easy to make friends, and it's certainly not easy to keep friends. Sometimes people like me don't get invited to do things with other people, which then makes them feel left out. I sometimes feel that way, and I mentioned it in my video that I made for senior project. When I made the video, with my siblings it was great, because my video has helped people and their kids. Right before I presented my video to my teachers and staff at school, I played another video that described me which was called Welcome To My Life by Simple Plan. That video described me in a way, by what some of the lyrics had mentioned. I still want others to know they are not alone. Hydrocephalus doesn't have a cure. It needs one. There are so many people like me who are living with Hydrocephalus, and there are some people who are going through the same things I am. Sometimes there are people who have to have surgery to get their shunt replaced on their birthday, but they shouldn't. There are some people who have to have surgery to get their shunt replaced, because it malfunctioned. I can be thankful that I don't have to go through that every day, but I can also pray that the people who do have to go through that, won't have to go through that the next time. So many people don't know what Hydrocephalus is, and that is why I am doing these posts because I want to educate them, I want to educate you, and I want those people, including you to learn about what Hydrocephalus is. There are different types of Hydrocephalus, and I am only going to name one of them. One of the types of Hydrocephalus people have, but I don't is Normal Pressure Hydrocephalus. I think it is important to know why this Month Matters and why it is Important. September is Hydrocephalus Awareness Month and It Matters. I can't wait to share a different post with you tomorrow, but until then I hope you learn more about it and tell someone too. This is the last thing I am going to say, and then this post will be done for today, until tomorrow. All I want to say, is Happy Birthday to my grandma who I love and I will always miss, but I know she is in Heaven, and I will see her again someday. So Happy Birthday grandma. I love you very much.
Thursday, September 24, 2015
Hydrocephalus Awareness Month
Today is the twenty fourth day of Hydrocephalus Awareness Month and I would like to share three facts that I found on Google, with you. Here are the facts. I thought these facts were important to share with you today because Hydrocephalus Matters. This Month Matters. People with Hydrocephalus who have to live with it, Matter. September is Hydrocephalus Awareness Month and It Matters. Hydrocephalus doesn't have a cure yet, but it needs one. Help spread awareness and tell someone about Hydrocephalus.
Wednesday, September 23, 2015
Hydrocephalus Awareness Month
Today is the twenty third day of Hydrocephalus Awareness Month and today I thought I would share these photos with you that I found on Google. I thought these photos were important to share with you. September is Hydrocephalus Month and It Matters. Those people like me who are going through the same things that I am going through, Matter. They are living with Hydrocephalus just like I am. They have to go through surgeries that are more than I had to go through. I am thankful I don't have to go through that many, but unfortunately the people who have to go through many surgeries are teenagers, adults, kids, maybe even infants. When I look at those stories, it makes me feel bad, but it reminds me that I am thankful, I don't have to go through that. Now the second photo may not always apply to me, but it does apply to others because shunts can malfunction and then that person has to get it replaced with a new one. I am going to continue tomorrow with a different post, but as I do a different post about Hydrocephalus, just remember it Matters. Help spread awareness. Help find a cure. Hydrocephalus doesn't have a cure yet. The only treatment for it is a shunt. This Month Matters.
Tuesday, September 22, 2015
Hydrocephalus Awareness Month
It is the twenty second day of Hydrocephalus Awareness Month and I would like to share a video I found on YouTube yesterday and I thought it was important to share this video with you. Here is the video. https://www.youtube.com/watch?v=f90ZdNbiigQ This is the link to the video and I hope that you will continue learn about Hydrocephalus because it Matters, this Month really Matters to me and others living with Hydrocephalus. So as I post a different post each day, I am hoping that others will learn about it and you will learn more about it. I hope that I will be able to educate those who don't know what Hydrocephalus is, by doing this. September is Hydrocephalus Awareness Month and It Matters. Hydrocephalus doesn't have a cure yet and the only treatment for it is a shunt.
Monday, September 21, 2015
Hydrocephalus Awareness Month
Today is the twenty first day of Hydrocephalus Awareness Month and I thought I would share a video on YouTube with you. Here is the video. https://www.youtube.com/watch?v=PUb8iLgpY8E&feature=player_detailpage I thought that this video was important to show you. I hope that it helps educate you and that you learn from this video. I hope that you will continue to learn why this month matters to me and to others living with Hydrocephalus and who are going through the same things. I hope that you will understand why Hydrocephalus Awareness Month Matters and why it is important. There is not a cure for Hydrocephalus yet. The only treatment for it is a shunt. I can be thankful that I don't have to go through so many brain surgeries, but some people not including me, have to go through more surgeries than I had to go through. There will always be someone else who has to go through getting their shunt replaced. I really do hope that you will continue to learn about Hydrocephalus. There are some that haven't survived, and then there are the people who haven't even heard of Hydrocephalus. So as I continue to do a different post each day, I hope that you learn about it, help others learn about it, spread awareness, and maybe help find a cure one day. September is Hydrocephalus Awareness Month and It Matters.
Sunday, September 20, 2015
Hydrocephalus Awareness Month
It is the twentieth day of Hydrocephalus Awareness Month and I thought I would share these two photos because I felt they were important to share with you. Hydrocephalus doesn't have a cure. This Month is important, it Matters to those like me living with it and going through the same things I am. I hope you will continue to learn about this month and why it matters. I hope you continue to learn about what others like me have to go through. I also hope that you continue to learn about Hydrocephalus, because September is Hydrocephalus Awareness Month and It Matters.
Saturday, September 19, 2015
Hydrocephalus Awareness Month
Today is the nineteenth day of Hydrocephalus Awareness Month and I thought I would share a video that I found on YouTube that shows how a Cerebrospinal Fluid Shunt is placed. I thought it was important to show and to share this video with you today. So here is the video. https://www.youtube.com/watch?v=Qmym2iFVNw8&feature=player_detailpage Here is the video link to watch the video. I hope you continue to learn why this Month Matters and is important to me and to others like me, going through the same things. September is Hydrocephalus Awareness Month and it Matters.
Friday, September 18, 2015
Hydrocephalus Awareness Month
It is the eighteenth day of Hydrocephalus Awareness Month and I thought I would share two photos I found on Google that I thought were important to show you. So here are the photos. These photos are the photos I thought were important to share with you this Month because this Month Matters to me and to those living with Hydrocephalus. I can't wait to share something different with you tomorrow. Now the first photo, is showing you what someone like me would like with Hydrocephalus and what someone who isn't me looks like without Hydrocephalus. Now in case you can't read the words for that photo it says, The Ventricular System of the Brain. When the spinal fluid does not circulate normally, the ventricles enlarge and hydrocephalus results. No Hydrocephalus. Cerebrum. Lateral Ventricles. Choroid Plexus. Fourth Ventricle. Cerebellum. Child with Hydrocephalus. Ventricles enlarged with fluid. September is Hydrocephalus Awareness Month and It Matters. I'm spreading Awareness by posting things about Hydrocephalus, and I am hoping by me doing that it will help educate those who don't know what Hydrocephalus is, and help them learn more about it. Hydrocephalus doesn't have a cure yet, and the only treatment for it, is a shunt.
Thursday, September 17, 2015
Hydrocephalus Awareness Month
Today is the seventeenth day of Hydrocephalus Awareness Month and I would like to share a photo and something that tells more about the photo. So first I am going to tell you more about the photo, then share the photo with you. This picture was taken in June of 1996 after I was life flighted to the Cleveland Clinic. I had a seizure that was resulted in brain damage because I had so much swelling in my brain that the wrinkles were completely smooth. The doctor said if I gotten there 15 minutes later I would've had severe brain damage and 30 minutes later would have resulted in me not surviving. After this picture was taken an external shunt was placed to monitor my fluid... and a few days after that I had another surgery to be permanently shunted. I hope you will continue to learn why this Month is so important to me and to others, and why it matters. The people in the photo with me are my three older sisters and older brother. September is Hydrocephalus Awareness Month. It Matters.
Wednesday, September 16, 2015
Hydrocephalus Awareness Month
Today is the sixteenth day of Hydrocephalus Awareness Month and I thought I would share what the awareness ribbons look like. I found these photos on Google. Here are the photos. These photos are important to me. This Month Matters to me, and to others who are going through the same things. This Month is important, and while you are enjoying today's photos please remember that Hydrocephalus Awareness Month Matters, it's important, and it's also a time to learn about what it is and why this month is important and why it matters. Hydrocephalus doesn't have a cure yet, and the only treatment for it, is a shunt. I can't wait to share something different with you tomorrow.
Tuesday, September 15, 2015
Hydrocephalus Awareness Month
It is the fifteenth day of Hydrocephalus Awareness Month and today I am going to share this photo with you. Here is the photo. This photo means a lot and says a lot. I found this photo on Google. This Month Matters to me and to others who are going through the same things I am. It also matters to those and myself who are living with Hydrocephalus. September is Hydrocephalus Awareness Month. I hope you enjoy this photo, and continue to learn why this month matters.
Monday, September 14, 2015
Hydrocephalus Awareness Month
Today is the fourteenth day of Hydrocephalus Awareness Month and today I thought I would share with you some quotes I found on Google. These I felt were important to share with you today. The second one is true for some people maybe not for me all of the time, but please remember its not always about looking at the pictures, videos, quotes, or the facts, it's about learning about what Hydrocephalus Awareness Month is all about. It's about learning about what people like me have to go through, it's about spreading awareness and educating those on what Hydrocephalus is. So I hope as you enjoy these quotes today, you will continue to learn about this month and why it's important.
Sunday, September 13, 2015
Hydrocephalus Awareness Month
It is the thirteenth day of Hydrocephalus Awareness Month and today I would like to share some photos that I found on Google. Here is the first photo. Here is the second photo which is beautiful and has the awareness ribbon with the word Hydrocephalus on it. Here is the third photo. This has the awareness ribbon for this month as well and I thought it was a nice picture to share with you. These are the only photos I am sharing today, because tomorrow is another day. I can't wait to share something different with all of you tomorrow because this month Matters.
Saturday, September 12, 2015
Hydrocephalus Awareness Month
Today is the twelfth day of Hydrocephalus Awareness Month and today I am going to show you a photo that describes in the picture of what a VP Shunt looks like and what a VA Shunt looks like. This is a picture that I found on Google, and one I felt was important to show you. As you can see there are two different types of shunts, one showing how the shunt tubing goes to the heart and the other one showing how the tubing goes to the abdominal cavity. This Month Matters to lots of people, like me. Now here is a photo that I would like to share with you for today as well. This is the last photo I will share with you today, and I can't wait to share something different with you tomorrow. Here is the last photo for today. I hope you continue to learn why this month is important.
Friday, September 11, 2015
Hydrocephalus Awareness Month and Remembering what happened on nine eleven
It is the eleventh day of Hydrocephalus Awareness Month and today I thought I would share this with you, this is a photo that I found on Google, that has Hydrocephalus Facts. I think it's important to learn about Hydrocephalus. September is Hydrocephalus Awareness Month and it Matters.
Today is not only the eleventh day of Hydrocephalus Awareness Month, which is important to learn about, but it's also important to remember what happened on this day which is 9/11. So I am going to share a photo with you on that as well. So here is the photo. This is the photo that I hope we can all remember because today is also important because we can't forget about what happened today.
Thursday, September 10, 2015
Hydrocephalus Awareness Month
Today is the tenth day of Hydrocephalus Awareness Month and today I thought I would share a photo. Here is the photo that I thought I would share with you for today's Hydrocephalus Awareness Photo. This Month Matters to Me and to the others who are living with it every day. Hydrocephalus doesn't have a cure yet. Here is the photo. My mom told me that this was when I had my external shunt put in. I haven't had to go back to the hospital for anymore shunt replacement surgeries. Which is a good thing, and I hope that I don't have too. I still have the pink bunny, that you see in the photo. September is Hydrocephalus Awareness Month, and this Month Matters. I am glad and thankful that I don't have to go back for anymore surgeries. Also that doesn't mean, it's the same for everyone though, a lot more people have to go through more surgeries then I had to go through. I hope people continue to learn more about why this month matters to me and to the others like me going through the same things I am. I hope that you will continue to learn why this month is important as well.
Wednesday, September 9, 2015
Hydrocephalus Awareness Month
Tuesday, September 8, 2015
Hydrocephalus Awareness Month
It is the eighth day of Hydrocephalus Awareness Month, so today I thought I would share a video that I found on YouTube that talks about and shows what Cerebrospinal Fluid is. Now when I tell you it talks about it, I'm talking about how the video has words in it to tell you about it. I felt that this video was important to show you. There are not very many people who know about Hydrocephalus and I feel that it is important to tell others about it and educate them on what Hydrocephalus is. This Month Matters to me, and to the thousands of people like me, who are living with it every single day. So here is the video. https://www.youtube.com/watch?v=K9BYEO9725k&feature=player_detailpage I hope that this video helps you learn more about what people like me have to go through. I can not wait to share something with you tomorrow but until then please enjoy the video. Hydrocephalus Awareness Month Matters.
Monday, September 7, 2015
Hydrocephalus Awareness Month
Today is the seventh day of Hydrocephalus Awareness Month and I am going to share a quote from one of my shirts I got from Hydro Angels Over America. The quote is this, You never know how strong you are until being strong is the only choice you have. I like that because sometimes people like me have to be strong. Hydrocephalus is something that people need to know about, and it needs a cure, because it doesn't have one yet. I got this from a website on Google. I'm hoping this helps people know what others and myself have to deal with it. Hydrocephalus is a brain condition that happens when cerebrospinal fluid (CSF) — the clear, watery fluid that surrounds and cushions the brain and spinal cord — cannot drain from the brain. It then pools, causing a buildup of fluid in the skull. Hydrocephalus gets its name from the Greek words for water (hydro) and head (cephalus), and sometimes is called "water on the brain."Hydrocephalus can cause babies' and young children's heads to swell to make room for the excess fluid. Older kids, whose skull bones have matured and fused together, have painful headaches from the increased pressure in the head. If it's not treated, hydrocephalus can lead to brain damage, a loss in mental and physical abilities, and even death. With early diagnosis and timely treatment, though, most children recover successfully. Causes
When everything is working normally inside the brain, CSF flows through narrow passageways called ventricles and exits the brain through a small reservoir at the base of the brain called the cistern. CSF delivers nutrients to the brain; it also takes waste away from its sensitive areas to be absorbed into the bloodstream. If there's a blockage in any of the ventricles, CSF backs up and causes hydrocephalus. This excess of fluid in the brain also can happen when the choroid plexus (the area of the brain that produces CSF) is in overdrive or if the waste products aren't properly absorbed by the bloodstream. Congenital hydrocephalus means a baby is born with the condition. This is often due to problems like spina bifida (abnormal development of the spinal cord) or aqueductal stenosis (the narrowing of a small passageway, the "aqueduct of Sylvius," that connects two major ventricles in the brain).Acquired hydrocephalus happens after birth and can affect people of any age. It's usually caused by bleeding in the brain. This can happen in premature babies or people who've had traumatic head injuries. Some kids can develop hydrocephalus due to a tumor or infection in the brain. Some cases have no known cause. Signs in Babies Symptoms of hydrocephalus vary depending on the age of a child. Babies under the age of 1 year will have heads that appear very swollen. Their skull bones — thin, bony plates that have not yet fused together — are connected by fibrous tissue called sutures. These sutures, or "soft spots," have not yet hardened and therefore stretch and expand to store the excess CSF. As a result, a baby with hydrocephalus will appear to have an oddly shaped head — usually much larger than other babies the same age.
Other signs to look for include: bulging at the soft spots "split" sutures — a gap can be felt between skull bones rapid increase in head circumference swollen veins that are easily seen with the naked eye downward cast of the eyes (called "sunsetting") Depending on how severe the condition is, babies also may seem excessively sleepy, fussy, and vomit or have seizures. Young children with hydrocephalus also may miss developmental milestones or may revert to earlier developmental stages. In extreme cases, a child also may experience "failure to thrive" and miss growth milestones. Signs in Older Kids Older children will not have the easily recognizable symptom of an enlarged head because their skull bones have fused together and can't expand to make room for the excess fluid. In these cases, added pressure on the brain can cause severe headaches that may wake a child in the middle of the night or early in the morning. Kids also might have: nausea/vomiting sleepiness
problems with balance and motor skills double vision squinting and/or other repetitive eye movements seizures Changes in personality, loss of new developmental abilities (like speaking or walking), and memory loss can happen in more advanced cases. Diagnosis A child who shows any of the signs and symptoms mentioned above should see a doctor right away. The doctor will perform examinations, which may include a medical history and diagnostic tests — like ultrasound, CT (computed tomography) scan, or MRI (magnetic resonance imaging) — to get a clear picture of the inside of the brain.
Treatment for hydrocephalus varies depending on the age of the child, the cause of the CSF buildup (whether from a blockage, overproduction of fluid, or another problem), and the child's overall health.
This creates an "evacuation route" that lets fluid drain from the brain and bypass any blockages that are causing a backup. The body then absorbs the CSF back into the bloodstream as it normally would.
After the ventriculostomy, surgeons cauterize (burn slightly) parts of the choroid plexus, the area of the brain that produces CSF. This is done to reduce the amount of CSF that the brain makes.
This surgical approach has a higher success rate than shunting (implanting a tube in the brain to drain the fluid), which used to be the standard surgery for kids with hydrocephalus. It's performed in kids ages 1 and up, but may be available to younger kids in the future.
Kids who have ventriculostomies and coagulation need to follow up with their care team often. If they develop hydrocephalus again, doctors usually have to do a shunting procedure because a repeat ventriculostomy is not likely to work. Shunt Procedure Shunt procedures, which have been done for decades, involve surgery to place one end of a catheter (flexible tube) into a ventricle of the brain and place the other end in the abdominal cavity, chambers of the heart, or space around the lungs. Fluid drains from the brain into these places and is absorbed by the bloodstream. A valve (flap that opens and closes) in the shunt system regulates the flow to prevent over-draining and under-draining.
While shunting has been an effective treatment for hydrocephalus, the long-term success rate of a shunt isn't great. There is a high chance of failure and complications after a shunt is implanted, with almost half of all shunts failing to work well within the first year. When this happens, a child needs to have surgery again to replace a catheter or valve or replace the entire shunt. Most kids who undergo shunting will require future operations over their lifetimes to deal with shunt problems.
Infections are another side effect of shunting. Most infections develop within the first few months after a shunt procedure and require temporary removal of the device while a child receives IV (given through a vein) antibiotics for up to 2 weeks. Because of the drawbacks of shunting, these procedures are done less and less these days. Doctors use shunting as an alternative when ventriculostomies and coagulation can't or don't work. Outlook With timely treatment, many kids with hydrocephalus go on to lead normal lives. Those with more complex medical problems, like spina bifida or bleeding in the brain from prematurity, may have more health problems due these conditions. In these kids, early treatment by developmental specialists, physical therapists, and occupational therapists can make recovery much more likely and greatly improve their outcomes. I can't wait to share something for day eight tomorrow, until then please enjoy these facts and the quote I have shared with you today.
When everything is working normally inside the brain, CSF flows through narrow passageways called ventricles and exits the brain through a small reservoir at the base of the brain called the cistern. CSF delivers nutrients to the brain; it also takes waste away from its sensitive areas to be absorbed into the bloodstream. If there's a blockage in any of the ventricles, CSF backs up and causes hydrocephalus. This excess of fluid in the brain also can happen when the choroid plexus (the area of the brain that produces CSF) is in overdrive or if the waste products aren't properly absorbed by the bloodstream. Congenital hydrocephalus means a baby is born with the condition. This is often due to problems like spina bifida (abnormal development of the spinal cord) or aqueductal stenosis (the narrowing of a small passageway, the "aqueduct of Sylvius," that connects two major ventricles in the brain).Acquired hydrocephalus happens after birth and can affect people of any age. It's usually caused by bleeding in the brain. This can happen in premature babies or people who've had traumatic head injuries. Some kids can develop hydrocephalus due to a tumor or infection in the brain. Some cases have no known cause. Signs in Babies Symptoms of hydrocephalus vary depending on the age of a child. Babies under the age of 1 year will have heads that appear very swollen. Their skull bones — thin, bony plates that have not yet fused together — are connected by fibrous tissue called sutures. These sutures, or "soft spots," have not yet hardened and therefore stretch and expand to store the excess CSF. As a result, a baby with hydrocephalus will appear to have an oddly shaped head — usually much larger than other babies the same age.
Other signs to look for include: bulging at the soft spots "split" sutures — a gap can be felt between skull bones rapid increase in head circumference swollen veins that are easily seen with the naked eye downward cast of the eyes (called "sunsetting") Depending on how severe the condition is, babies also may seem excessively sleepy, fussy, and vomit or have seizures. Young children with hydrocephalus also may miss developmental milestones or may revert to earlier developmental stages. In extreme cases, a child also may experience "failure to thrive" and miss growth milestones. Signs in Older Kids Older children will not have the easily recognizable symptom of an enlarged head because their skull bones have fused together and can't expand to make room for the excess fluid. In these cases, added pressure on the brain can cause severe headaches that may wake a child in the middle of the night or early in the morning. Kids also might have: nausea/vomiting sleepiness
problems with balance and motor skills double vision squinting and/or other repetitive eye movements seizures Changes in personality, loss of new developmental abilities (like speaking or walking), and memory loss can happen in more advanced cases. Diagnosis A child who shows any of the signs and symptoms mentioned above should see a doctor right away. The doctor will perform examinations, which may include a medical history and diagnostic tests — like ultrasound, CT (computed tomography) scan, or MRI (magnetic resonance imaging) — to get a clear picture of the inside of the brain.
Treatment Options
It is important to treat hydrocephalus right away. Untreated hydrocephalus can get worse and cause further problems in the nervous system.Treatment for hydrocephalus varies depending on the age of the child, the cause of the CSF buildup (whether from a blockage, overproduction of fluid, or another problem), and the child's overall health.
Ventriculostomy and Coagulation
Endoscopic third ventriculostomy (ETV) with choroid plexus coagulation (CPC) is a relatively new procedure that is becoming common for kids who need surgery. This minimally invasive approach involves placing a small, lighted camera (called an endoscope) inside the brain so that surgeons can see the surgical site on a computer monitor. Then, using very small instruments, surgeons make a tiny hole in the bottom of the third ventricle of the brain.This creates an "evacuation route" that lets fluid drain from the brain and bypass any blockages that are causing a backup. The body then absorbs the CSF back into the bloodstream as it normally would.
After the ventriculostomy, surgeons cauterize (burn slightly) parts of the choroid plexus, the area of the brain that produces CSF. This is done to reduce the amount of CSF that the brain makes.
This surgical approach has a higher success rate than shunting (implanting a tube in the brain to drain the fluid), which used to be the standard surgery for kids with hydrocephalus. It's performed in kids ages 1 and up, but may be available to younger kids in the future.
Kids who have ventriculostomies and coagulation need to follow up with their care team often. If they develop hydrocephalus again, doctors usually have to do a shunting procedure because a repeat ventriculostomy is not likely to work. Shunt Procedure Shunt procedures, which have been done for decades, involve surgery to place one end of a catheter (flexible tube) into a ventricle of the brain and place the other end in the abdominal cavity, chambers of the heart, or space around the lungs. Fluid drains from the brain into these places and is absorbed by the bloodstream. A valve (flap that opens and closes) in the shunt system regulates the flow to prevent over-draining and under-draining.
While shunting has been an effective treatment for hydrocephalus, the long-term success rate of a shunt isn't great. There is a high chance of failure and complications after a shunt is implanted, with almost half of all shunts failing to work well within the first year. When this happens, a child needs to have surgery again to replace a catheter or valve or replace the entire shunt. Most kids who undergo shunting will require future operations over their lifetimes to deal with shunt problems.
Infections are another side effect of shunting. Most infections develop within the first few months after a shunt procedure and require temporary removal of the device while a child receives IV (given through a vein) antibiotics for up to 2 weeks. Because of the drawbacks of shunting, these procedures are done less and less these days. Doctors use shunting as an alternative when ventriculostomies and coagulation can't or don't work. Outlook With timely treatment, many kids with hydrocephalus go on to lead normal lives. Those with more complex medical problems, like spina bifida or bleeding in the brain from prematurity, may have more health problems due these conditions. In these kids, early treatment by developmental specialists, physical therapists, and occupational therapists can make recovery much more likely and greatly improve their outcomes. I can't wait to share something for day eight tomorrow, until then please enjoy these facts and the quote I have shared with you today.
Sunday, September 6, 2015
Hydrocephalus Awareness Month
Today is the sixth day of Hydrocephalus Awareness Month and today I thought I would share a Hydrocephalus Awareness Fact with you, that I found on Google. This is something that I felt was important to share with you because so many people do not understand what people like me have to go through. There are a lot more people who don't even know what Hydrocephalus is. There is not a cure for it yet, and in the photo that says there is no cure for it, it's true because the only treatment for it, is a shunt. I feel it's important to share this with all of you today because Hydrocephalus Awareness Month Matters to Me, and to the thousands of other people who are living with it.
Saturday, September 5, 2015
Hydrocephalus Awareness Month
Today is the fifth day of Hydrocephalus Awareness Month, which means instead of showing you a video about Hydrocephalus and a shunt, I am going to show you a video about Hydrocephalus. Now this is a video I found on YouTube. I'm very excited to show you this video because I am hoping you'll be able to learn more about it and I hope that this will help those who don't know what Hydrocephalus is, learn more about it too. Here is the video. https://www.youtube.com/watch?v=okD6_k9Xosk This is the video that I am hoping will continue to educate people on Hydrocephalus. This month matters to me and to the people like me, going through the same things. September is Hydrocephalus Awareness Month. I can not wait to show you something different tomorrow, but until then please enjoy the video and continue to learn why it's important to know why Hydrocephalus is important and why it matters. So many people don't even know what it is. So that is why we need to help them understand what people like me are living with every single day.
Friday, September 4, 2015
Hydrocephalus Awareness Month
Today is the fourth day of Hydrocephalus Awareness Month, and I felt that it was important if I show you a video I found that talks about Hydrocephalus, and talks about a shunt. I feel that it is important to learn about the two because there are people that have absolutely no clue what a shunt is or what Hydrocephalus is, and I feel that it is not only my job to help those people learn about it this month, but our job to educate those who don't know, because there are people like me who have to live with Hydrocephalus every day and there is not a cure for it, and the only treatment for it is a shunt. I hope as I do a different post for this month, that you will learn not only what I have to go through, but what people like me have to deal with too. Here is the video that I am hoping will help those understand more and help educate them as well on Hydrocephalus and a shunt. This month matters not only to me but to the others just like me who are going through the same things. I can't wait to continue to share more this month with all of you because September is Hydrocephalus Awareness Month, and September Hydrocephalus Awareness Month Matters. I think we need to tell others about Hydrocephalus, because it's important that they know what people like me have to go through. https://www.youtube.com/watch?v=OyEoEDI_V7Q This is the video that I hope educates people more about shunts and Hydrocephalus. Tomorrow I can not wait to share something different for the fifth day, but until then please enjoy this video.
Thursday, September 3, 2015
Hydrocephalus Awareness Month
Today is the third day of Hydrocephalus Awareness Month, and I decided to show you a video that I found on YouTube of what a shunt is and what it looks like. Hydrocephalus Awareness Month Matters to me and to the thousands of other people who have it. I'm living with it every single day just like the other thousands of people like me. There isn't a cure for it yet. So here is the video.
https://www.youtube.com/watch?v=Yb9dSjDykpI , That is the link to the video. I hope that as I do a post for this month, you will continue to learn about Hydrocephalus and why Hydrocephalus Awareness Month is important to me and people like me. I'm hoping this video helps you to learn more about what a shunt is, and how it would be hard for someone like me to describe what a shunt looks like. I was born with Hydrocephalus, and I have a learning disability. It's hard for me to make friends. I hope you enjoy the video that I am sharing with you today, because I feel it's important to tell others about what a shunt is and what it looks like, since today is the third day of Hydrocephalus Awareness Month. I am going to be posting something different for this month, because I feel it's important not only to me, but to others who are going through the same things. This month matters.
https://www.youtube.com/watch?v=Yb9dSjDykpI , That is the link to the video. I hope that as I do a post for this month, you will continue to learn about Hydrocephalus and why Hydrocephalus Awareness Month is important to me and people like me. I'm hoping this video helps you to learn more about what a shunt is, and how it would be hard for someone like me to describe what a shunt looks like. I was born with Hydrocephalus, and I have a learning disability. It's hard for me to make friends. I hope you enjoy the video that I am sharing with you today, because I feel it's important to tell others about what a shunt is and what it looks like, since today is the third day of Hydrocephalus Awareness Month. I am going to be posting something different for this month, because I feel it's important not only to me, but to others who are going through the same things. This month matters.
Wednesday, September 2, 2015
Hydrocephalus Awareness Month
Today is the second day of Hydrocephalus Awareness Month and I decided that instead of a picture I would post some facts about Hydrocephalus. Now these are facts I found on Google, so these are not my own. Fact One: Hydrocephalus Also called: water on the brain.
Fact Two: A build-up of fluid in the cavities deep within the brain.
Fact Three: Rare 20,000 to 200,000 US cases per year.
Fact Four: Medically treatable By a doctor or professional.
Fact Five: Requires a medical diagnosis Always requires lab tests or imaging.
Fact Six: Medium-term Often resolves within a few months.
Fact Seven: The extra fluid puts pressure on the brain and can cause brain damage. It's most common in infants and older adults.
Fact Eight: Hydrocephalus is characterized by head enlargement in infants. Adults and older children experience headache, impaired vision, cognitive difficulties, loss of coordination, and incontinence.
Fact Nine: Treatment is often a tube (shunt) inserted surgically into a ventricle to drain excess fluid.
Fact Ten: Ages affected: 0-2, 3-5, 6-13, 14-18, 19-40, 41-60, and 60+.
These are facts that I got off Google and now I am going to share one of my own facts. So here is Fact Eleven: Hydrocephalus doesn't have a cure. Fact Twelve: People like me are living with Hydrocephalus everyday. Fact Thirteen: A lot of people do not know what Hydrocephalus is.
So those are some of my facts on Hydrocephalus and some Google facts on Hydrocephalus.
Fact Two: A build-up of fluid in the cavities deep within the brain.
Fact Three: Rare 20,000 to 200,000 US cases per year.
Fact Four: Medically treatable By a doctor or professional.
Fact Five: Requires a medical diagnosis Always requires lab tests or imaging.
Fact Six: Medium-term Often resolves within a few months.
Fact Seven: The extra fluid puts pressure on the brain and can cause brain damage. It's most common in infants and older adults.
Fact Eight: Hydrocephalus is characterized by head enlargement in infants. Adults and older children experience headache, impaired vision, cognitive difficulties, loss of coordination, and incontinence.
Fact Nine: Treatment is often a tube (shunt) inserted surgically into a ventricle to drain excess fluid.
Fact Ten: Ages affected: 0-2, 3-5, 6-13, 14-18, 19-40, 41-60, and 60+.
These are facts that I got off Google and now I am going to share one of my own facts. So here is Fact Eleven: Hydrocephalus doesn't have a cure. Fact Twelve: People like me are living with Hydrocephalus everyday. Fact Thirteen: A lot of people do not know what Hydrocephalus is.
So those are some of my facts on Hydrocephalus and some Google facts on Hydrocephalus.
Tuesday, September 1, 2015
Hydrocephalus Awareness Month
Today Is Hydrocephalus Awareness Month and I think it is important that we spread awareness by telling people who are like me what thousands of people are dealing with. The only treatment for it right now is a shunt and there is no cure for it yet. I decided that I am going to do a post for this month, so that I can tell others about what I have to go through and what thousands of other people like me have to go through. I decided that today I would post a picture of the ribbon since today is the first official day of Hydrocephalus Awareness Month and the first of September. Hydrocephalus Awareness Month Matters to me because I have it and it matters to those like me living with it too.
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